The Sickle Cell Society has partnered with the Breaking Down Barriers funded by the Sylvia Adams Trust.
In September 2016 we received a £5000 grant as members The Breaking Down Barriers Project in order to help us further support our service users with French and Portuguese resources.
We came to this decision after cross referencing the most widely spoken languages in the UK with ethnic groups that experience a higher incidence of SCD and found that we needed to prioritise translation into French and Portuguese. As this will enable them to not only understand the nature of their condition, in addition but also what help, support and care is available for them through our helpline our services.
The Breaking Down Barriers Project’s is managed by Alström Syndrome UK fellow members are; AKU society, Bardet-Biedl Syndrome UK, Ehlers-Danlos Support UK, Ectodermal Dysplasia Society, Huntington’s Disease Association, Jnetics, Niemann Pick UK, Wellchild and SWAN UK (syndromes without a name).
As a collective we aim to meet regularly to discuss development and updates in order to gain greater understanding of the impact of living with a genetic condition, in order to improve the standards of our service users and support by our service users.