Following the Governing Body Meeting of Brent Clinical Commissioning Group (CCG) on September 7th, it has been decided that the Brent Sickle Cell Advice and Support Service (BSCASS) will not close on September 17th. The service, provided by the Sickle Cell Society, was threatened with imminent closure, which attracted local media attention.
It was agreed at the meeting on the 7th that BSCASS will continue to provide its information, advice and support services to Brent residents living with sickle cell disorders until a viable alternative service is proposed. We will be attending an event organised by the CCG with people living with sickle cell and their families on September 15th to begin the process of developing options having regard to the experience of BSCASS over the past year for Brent’s sickle cell community.
Responding to the news that the Brent Sickle Cell Advice and Support Service will not be imminently closing, John James, CEO of the Sickle Cell Society said:
We are relieved to hear that Brent CCG has changed its mind in immediately decommissioning the Brent Sickle Cell Advice and Support Service. The service has been helping people living with sickle cell in the borough, and we are delighted to be able to continue with this work for the foreseeable future. The Sickle Cell Society are happy to work with Brent CCG in developing a community service for people affected by sickle cell, and we will engage throughout the process. We are grateful for the support given to us throughout these uncertain times from patients, healthcare professionals, politicians and Brent Patient Voice.
Our next step is to engage in working towards developing future services. We will be attending the patient forum on September 15th, and encourage all Brent residents who are affected by sickle cell disorders to join us and put forward their specific needs and concerns.
The meeting about future services takes place the CVS patient forum on 15th September, 1pm-3pm at CVS Training Room, Ground Floor, 5 Rutherford Way, Wembley HA9 0BP. Please RSVP to firstname.lastname@example.org