Clinical Trials

A clinical trial is research which looks at how effective and safe a treatment or medicine is. There have been only three main treatment options for sickle cell in the last 50 years. We have been campaigning for a number of years to make more options available to people living with sickle cell. Through clinical trials a wider choice of safe and effective treatment for sickle cell will become available in the future but they need participants to make this happen.

Why take part in a clinical trial?

One of the main reasons you may want to take part in a clinical trial is to help further research and to be part of the process which leads to new medicine and treatment for sickle cell.

You can find out more about why you should take part in clinical trials and other information about the process here: www.ukctg.nihr.ac.uk/clinical-trials/why-take-part-in-a-clinical-trial/

Clinical Trials in the UK

The list below provides information and links to a range of clinical trials for sickle cell in the UK. If you are looking to participate in a clinical trial, click on the links to find more information on what it will require from you, if you are eligible and if there are any risks.

Epidemiology of Silent and Overt Strokes in Sickle Cell Anemia [London]

Study of Efficacy, Safety and Tolerability of ACZ885 (Canakinumab) in Pediatric and Young Adult Patients with Sickle Cell Anemia [London]

Long-term Safety and Efficacy of Ferriprox® in Iron Overloaded Patients With Sickle Cell Disease or Other Anemias [London]

For more information on Clinical Trials visit: https://www.nhs.uk/conditions/clinical-trials/

Or you can get in touch with our helpline by calling 02089637794 or emailing info@sicklecellsociety.org