Resources
Resources
From booklets for kids to information for adults, schools and health care professionals we have a whole range of resources for you to use. Plus, research, reports, all of our newsletters and other useful materials.
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SCS Newsletter Winter 2016
The Sickle Cell Society’s Winter 2016 newsletter is now available! Read all ab...
Piloting a new Patient Reported Experience Measure for Sickle Cell Disease: A Report of the Findings
First nationwide sickle cell survey identifies awareness as key to healthcare im...
Sickle Cell Disorder and Sickle Cell Trait
Sickle Cell Disorder And Sickle Cell Trait is a short leaflet explaining key poi...
Pain management guidelines for sickle cell
The Sickle Cell Society helped develop these most recent guidelines for manageme...
Standards for the Clinical Care of Adults with Sickle Cell Disease in the UK
For the latest edition of the Sickle Cell Standards click this link: www...
SCS Newsletter Winter 2015
Our Winter 2015 newsletter is now available! From a report on our Children’s H...
Sickle Cell: The History, Legacy and Achievements
Highlights from the Sickle Cell Society’s Black History Month event in 2015. T...
Travel insurance for sickle cell
This list is collated from experiences of people with sickle cell, who have foun...
Sickle Cell Society and Information Standard
The Sickle Cell Society achieved the Information Standard in 2011. The Informa...
Did You Know Age 5-10: an information booklet for children
Did You Know Age 5-10 is a booklet for children aged 5-10 explaining sickle cel...
Did You Know Age 11-16: an information booklet for young people
Did You Know Age 11-16 is a booklet for young people aged 11-16 explaining sic...
The Sickle Cell Trait Toolkit
We get lots of questions about sickle cell trait. From risks relating to sport,...
Let’s Talk About Sickle Cell: sickle cell awareness poster
Let’s Talk About Sickle Cell is a brand new resource prepared by the Sickle Ce...
The Family Legacy
This short drama explores the issues surrounding inheritance of sickle cell and ...
Inheritance of Sickle Cell Anaemia
Introduction to the Inheritance of Sickle Cell Anaemia Everyone has two copies o...
Kye Gbangbola on This Day Live
Kye Gbangbola on This Day Live Chair of the Sickle Cell Society, Kye Gbangbola, ...
SCS Newsletter- Summer 2015
The Summer 2015 Newsletter is here! Click here to download [pdf] To receive Sic...
Supporting Young People with Sickle Cell at School: A Guide
Sickle Cell and Thalassaemia: A guide to school policy [pdf] A new law (Section...
World Sickle Cell Day – Arise News
We take a look at the blood disorder and meet a man who has learnt to live with ...
Fixers Sickle Cell Story on ITV News Granada Reports, March 2014
Fixer Sanah Shaikh (24) from Old Trafford, was diagnosed with sickle cell diseas...
What is Sickle Cell Anaemia?
This page will give you a brief guide to Sickle Cell Disorders and provide links...
Living with Sickle Cell
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
Day to Day care to people with SCD
A Guide for Parents, Guardians, Families and others giving Day to Day care to pe...
Information for Health Professionals
This page is intended to give you the information you need to recognise sickle c...
Why is Blood from Afro-Caribbean Donors Special?
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
Cognitive Behavioural Therapy (CBT) for Sickle Cell Patients – Focus Groups Report
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
Sexual Experiences in Men with Sickle Cell Disease – a Phenomenological Enquiry
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
A Psychological Approach to Managing Sickle Cell Disease and Pain
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
New Treatment Strategies For Sickle Cell Disease
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
Cognitive Therapy for the Management of Sickle Cell Disease Pain
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
The lack of key neuropsychology service
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
Sickle cell anemia and S-thalassemia in Sicilian children
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
European Haemoglobinopathy Registry
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
Licenced and Unlicenced Medicines (UK only)
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
Hydroxyurea in children with sickle cell
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
Massage Therapy in the Treatment and Management of Sickle Cell Anaemia
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
The Combined Contraceptive Pill
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
Sickle Cell Around the World
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
The Politics of Sickle Cell and Thalassaemia
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
Travel Tips
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
Testing Your Baby for Sickle Cell During Pregnancy
Testing Your Baby for Sickle Cell During Pregnancy Introduction It is possible t...
Pain Management & Sickle Cell Sufferers
This is a report on external research. It is not endorsed by the Sickle Cell Soc...
Living with Sickle Pain Report
This is a report on external research. It is not endorsed by the Sickle Cell Soc...