Remember back in June when we and Professor Simon Dyson wrote a letter to Universal Studios, coming out against a very unpleasant joke the film Ted 2 made about sickle cell? The film displayed some serious factual errors about sickle cell, and tied in strongly to the stigma people living with the disease face.

Universal Studios heard what we had to say, and listened! We took part in a conference call with Professor Dyson, Craig Robinson, Chief Diversity Officer at NBC Universal; Peter Cramer, President of Production at Universal Pictures and Cindy Gardner, Senior Vice President, Corporate Affairs at Universal Pictures. The studio bosses agreed to run awareness-raising programmes about sickle cell on TV channels they control in the USA, educating the public about the realities of life with sickle cell.

We warmly thank everybody who added their voices to ours in protesting the crass and stigmatising joke in the film. Together, we’ve helped engage the executives and fight for something positive. Complaining is more than just words… it leads to action!