The Sickle Cell Society believes that individuals suffering from sickle cell disease has the right to quality care. This can only be achieved if funding is made available to educate health carers and other professionals about the condition. The Society aims to provide this. The Society does not discriminate between the types of sickle cell disorders or the ethnic groups concerned. Both sexes are equally affected, and should have equal access to support and services within a confidential and sensitive environment. We respect the views of every patient. We have a network of committed volunteers, who play an important part in running the charity, providing administrative backup, and helping with fund-raising activities.
Donations from the public, fund-raising activities and membership fees are also part of our life support. Without them, we would be unable to finance the essential welfare, research and educational projects and we would be unable to offer children a much-needed holiday. The Society benefits from the support of a wide range of individuals and organisations nationally, who together play a vital role in its success. It draws funding support from amongst others the Department of Health, Community Fund, Lloyds TSB Foundation, PPP Healthcare Medical Trust and Goldman Sachs International.
The Sickle Cell Society was first set up as a registered charity in 1979. It was formed by a group of patients, parents and health professionals who were all concerned about the lack of understanding and the inadequacy of treatment for sufferers of sickle cell disorders.
The Society is managed by a committee of 12 volunteers elected at the Annual General Meeting, and they meet each month. The Management Committee is accountable to the members and works with a small core of paid staff to further the Society's aims by providing special services and welfare schemes for sickle cell sufferers.
Our vision is to be the most successful sickle cell organisation nationally with a wide network of well-informed, committed and active supporters working at local, national and international levels. We will be better able to empower and assist people with sickle cell disorders to achieve their full economic and social potential. We hope that this page provides you with a better understanding of the work which the Society does, because it is only by working together that we can achieve this vision.
If you have a Sickle Cell disorder, then join us, use our services, and let us help you overcome some of the difficulties the illness causes. If you haven't then join our network of supporters - help us to raise awareness about the disease; help us to raise vital funds for research, education and welfare for sickle cell sufferers. By joining together, we can all turn a sickle into a smile!
THE SICKLE CELL SOCIETY GOVERNANCE TEAM
PRESIDENT & PATRONS
Mr Michael Parker CBE, FCCA
(Chairman, Kings College Hospital NHS
Foundation Trust, London)
Professor Elizabeth Anionwu CBE
(Co-founder Sickle Cell Society)
Mrs Sherlene Rudder MBE
(Co- founder Sickle Cell Society)
Mrs Millicent Simpson
(Co-founder Sickle Cell Society)
Baroness Floella Benjamin OBE, DL of
Lord Paul Boateng of Akyen
Sir William Doughty
Mr Derrick Evans
Mr Lenny Henry OBE
Dr David Rees
Dr Ade Olujohungbe
Dr Phil Darbyshire
Dr Allison Streetly
Dr Nellie Adjaye
Professor Dame Sally Davies CMO
Dr Mark Layton
Dr Norman Parker
Dr Mary Petrou
Professor Simon Dyson
Dr. Kofi Anie
BOARD OF TRUSTEES
Anne Welsh BSc, MSc (Vic Chair)
Mr Junior Kebbay (Secretary)
Ms Samantha Cumberbatch (Vice Secretary)
Mr BabaTunde Akintola (Treasurer)
Mr Kingsley Ibeke (Vice Treasurer)
Mr Sanusie M. Sesay
Mr Korku Mifetu
Mr Kye Gbangbola
Mr Narcisse Kamga (Chair)
Ms Sally-Ann Ephson
Mr Joseph Ezeakunne
CO-OPTED BOARD MEMBERS
Ms. Morenike Onabanjo
Ms. Stephanie George
Ms Mona Adam
Ms Lucreta LaPierre MBE
Dr Joan St. John GP
Dr.Asa'ah Nkohkwo FRSH National Comprehensive Care Advisor
Mrs Carlotta Tate Olason Health Information Officer
Ms Iyamide Thomas Regional Care Advisor
Mrs Comfort Ndive Regional Care Advisor
Ms Miriam Williams Officer Manager/accounts
Ms Kalpna Patel Fundraising Manager
Mr Paul Mohammad ICT Consultant
John James Chief Executive Officer
The Sickle Cell Society is committed to delivering the highest possible quality of service. Over the years, we have worked hard to improve efficiency, strengthening our financial and management systems, and building links with other sickle cell organisations. These efforts are paying dividends, as research indicates that we are managing to reach and help more and more clients each year. Last year, we dealt with over 3,500 requests for information, and gave many talks and presentations. Our Society is featured in a Charity Commission video on good practice entitled 'The Good Trustee Guide'. We are constantly monitoring and evaluating our services and would welcome any feedback on our performance.
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