Privacy Policy
The Society acknowledges that your privacy is important, therefore to better protect your privacy we provide this notice explaining our online information practices and the choices you can make about the way your information is collected and used. To make this notice easy to find, we make it available on our homepage and at every point where personally identifiable information may be requested.
Links to third party Websites
The Sickle Cell Society`s website contains links to websites operated by third parties. Therefore, such links are provided for your convenience only. Links to third party sites are identifiable because clicking on them will display the third party's website URL.
When you access any other website by means of a link from this website you should understand that The Sickle Cell Society does not control those websites and will not be responsible for their contents. However, inclusion of links to such websites does not imply any endorsement of the material on such websites or any association with their operators. Furthermore, Sickle Cell Society`s policy is to obtain permission to link to other websites, and contextual links are provided to sites deemed by us to be appropriate to the Society’s, aims and objectives.
Linking to The Sickle Cell Society's website
The Sickle cell Society is committed to working with other organisations which share our aims and values and encourages the development of websites which will help promote knowledge and understanding of sickle cell We are happy for other organisations and individuals to link from their own websites to our website but any such links must not infer any endorsement or sponsorship by The Society of your products, services, or site content (including any opinions expressed therein). Nothing on your site should simply that any part of The Society’s site is part of your own site and any page or file that you link to on The Sickle Cell Society site must be called with its URL displayed.
However, The Sickle Cell Society retains the right to withdraw permission to link to our site without explanation or notice if we think that such links are excessive or inappropriate.
Requests for reciprocal links
The Sickle Cell Society when considering requests for links from our website to other websites we use the following criteria.
Websites that we link to:
Need be related to sickle cell disease or issues related to sickle cell, must be of national interest, and must not be commercial sites.
Information Quality Statement
The Sickle Cell Society adheres to appropriate standards in the production and dissemination of information: The Sickle Cell News Review is an open forum to individuals and interested groups and organisations. Therefore opinions and ideas expressed by authors are not necessarily those of the Sickle Cell Society. However, all patent information relating to health and social care in the news review has been produced in accordance with the requirements of the information standard to which the Sickle cell Society is accredited. The above said, information of a medical nature from us is always screened through our traditional grading system (p9, Standards for the Clinical Care of Adults with Sickle Cell Disease in the UK, Sickle Cell Society, July 2008): Grade A (highest level of confidence): statement is backed by at least one randomised trial as part of the body of the literature of overall good quality and consistency addressing the specific issue; Grade B: statement is backed by well conducted clinical studies but no randomised clinical trial on the issue; Grade C (lowest level): statement is backed mainly by expert opinion, albeit of respected Finally, we would advise patients to always refer to their medical doctor on matters in relation to their Healthcare.
Contact for web link enquiries
If you have any queries relating to our website policy, please email or write to us at
The Sickle Cell Society
54 Station Road
London NW10 4UA
Tel: 0208 961 7795
Email: info@sicklecellsoceity.org
What you can do:
Information about sickle cell
Please select one of our articles below to read
more information about sickle cell disorder.
To receive all the latest updates about SCS please subscibe to our monthly newsletter.
Sickle Cell Disorders are a group of genetic diseases that affect the red blood cells of people with the condition. Read more here.
There are many ways to make living with sickle cell easier. The pages below should answer many of your questions and provide useful information.
The society's main source of funds is from donations and fundraising. Each item purchased in our shop raises much needed funds for the society and promotes the work we do. Please support us by visiting our shop.
The Society provides support, care and advice to those in the community affected by Sickle Cell. You may find a number of the information/facts sheets below useful.
The society's main source of funds is from donations and fundraising. We are very proud of our team who work tirelessly to raise money to fund the society and the support work we do.
One of the Society's main source of funds is through donations from the public. Without them, we would be unable to finance the essential welfare, research and educational grants.
Sickle Cell Society is a registered Charity No. 104 6631. Registered as a Company limited by guarantee in England & Wales No. 284 0865
Registered office at 54 Station Road, London NW10 4UA. Tel: 0208 961 7795/4006 , Fax: 208 661 8346 and Email: info@sicklecellsociety.org