Resources

  Inheritance of Sickle Cell Anaemia Introduction Everyone has two copies of the haemoglobin gene in every cell in their body (apart from eggs and sperm). They get one from their mother and one from their father. When eg... Read more

  Information for Health Professionals   This page is intended to give you the information you need to recognise sickle cell disease and to help someone who has it to lead a good life. This site has been approve... Read more

  A Guide for Parents, Guardians, Families and others giving Day to Day care to people with SCD This page is intended to give you the information you need to understand how to help someone who has a Sickle Cell Dis... Read more

  Travel Tips Contents Travel tips Travel Insurance Update A Travelling Guide for people with Sickling Disorder Travel tips Orla Cummins, Assistant Psychologist Brent Sickle Cell and Thalassaemia C... Read more

  The Combined Contraceptive Pill and Women with Sickle Cell Disorders - Dr Wai Yoong, Dept of Obstetrics & Gynaecology, Royal Free Hospital; Miss Susan Tuck, Consultant. Contraception plays an important part in the health car... Read more

  Sickle Cell Around the World   A number of recent meetings may interest readers.   Hofuf, Eastern Province, Saudi Arabia, September 15-18, 2003. Hofuf is one of two oases in the Eastern Province of Saudi Ar... Read more

  Book Review: The Politics of Sickle Cell and Thalassaemia Authors: Elizabeth Anionwu & Karl Atkin Publishers: Open University Press, Buckingham, 2001 - ISBN 0-335-19607-1 This book is a title in the OUP's series... Read more

  A Vaccine Substitute for Penicillin? WYETH'S PREVENAR Due to their weakened immune system, contracting bacteria such as pneumococcus can cause otherwise stable sickle-cell sufferers to go into life-threatening sickling crisi... Read more

  Licenced and Unlicenced Medicines (UK only) One of the drugs used in the treatment of Sickle Cell Disease is Hydroxyurea. This drug is unlicensed in the UK. Below mentioned are the reasons why medicines are licensed and why som... Read more

  Hydroxyurea in children with sickle cell disease Marilyn Roberts-Harewood Specialists Registrar in Haematology Central Middlesex Hospital, London, UK The Multicentre Study of hydroxyurea (MSH), published in 1995, was a randomise... Read more

  Massage Therapy in the Treatment and Management of Sickle Cell Anaemia This is an extract written by Kate Coleman, during her clinical placement at the Royal Free Hospital as a massage therapist. Patients can experience severe p... Read more

  Mind the Gap! The lack of key neuropsychology service provision for sickle cell children Dr Anna Asgharian. Clinical Psychologist This article was written while Dr Asgharian was based at The Brent Sickle Cell and Thalassaemi... Read more

  Sickle cell anemia and S-thalassemia in Sicilian children Giovanna Russo and Gino Schiliro Division of pediatric Hematology and Oncology, University of Catania, Catania, Italy Sickle cell disease (SCD) is the most common gen... Read more

  European Haemoglobinopathy Registry Principal Investigator: Professor Sally C. Davies Data Analyst: Brian Dugan Project Co-ordinator: Annette Gilmore A multi-centre registry of patients with haemoglobinopathies, known as the... Read more

Reproductive Decision Making in Women with Sickle Cell Trait Research Update This is the title of a piece of research that has been taking place through Sickle Central in Brent. The aim is to find out more about the experiences of women wh... Read more

  Cognitive Therapy for the Management of Sickle Cell Disease Pain Dr Veronica (Nicky) Thomas Chartered Health Psychologist/Senior Lecturer, Department of Haematology, Guy's & St. Thomas' Hospital & United Medical &a... Read more

  New Treatment Strategies For Sickle Cell Disease Dr.A.OLUJOHUNGBE Dip.Haem(UK).MRCP.MRCPath., Senior Registrar in Haematology, Manchester Royal Infirmary, Oxford Road, Manchester M13 9WL Dr.A.YARDUMIAN MD.FRCP.FRCPath., ... Read more

  A Psychological Approach to Managing Sickle Cell Disease and Pain The management of sickle cell disease and its associated pain is an increasing challenge to both clinicians and patients. Cognitive Behavioural Therapy (CBT) has been... Read more

  Cognitive Behavioural Therapy (CBT) for Sickle Cell Patients - Focus Groups Report In This Report Bodily Symptoms That Define Sickle Cell Disease Triggers of Crises Importance of Lay Beliefs Powerful Though... Read more

Guide to school policy for young people with sickle cell and thalassaemia    booklet. click hear for a copy   Produced by the SCOOTER Project at De Montfort University http://www.sicklecellanaemia.org/OER/resources/... Read more

  Sexual Experiences in Men with Sickle Cell Disease - a Phenomenological Enquiry Tony Duffy, MSc Human Sexuality, Dip. Couns, RMN Introduction Human sexuality is an integral part of our existence, a vital aspect of humanit... Read more

  Why is Blood from Afro-Caribbean Donors Special? The information presented in this article came from the Blood Transfusion Service As you probably know, your blood group is inherited from your parents. When you become a blood do... Read more

  Living with Sickle Pain A report just published presents the results of recent research with 57 individuals living with sickle cell disorders from across Greater London (October 1998, Department of Public Health Sciences at Guy'... Read more

  Living with Sickle Cell by Penny Scott PhD and Priscilla Alderson PhD This article reports interviews with six men and four women who have sickle cell anaemia. They are aged 21-33 and have all had further or higher education. T... Read more

  Pain Management & Sickle Cell Sufferers The Society are delighted to announce a joint project with the local sickle cell centre in Brent to develop a Cognitive Behavioural Therapy (CBT) Package for adults with sickle cell. Despi... Read more

Did you know booklets for children 5 to 10 years click here to read Did you booklets for children 11 to 16 yeards click here to read ... Read more

Sickle Cell Disorders are a group of genetic diseases that affect the red blood cells of people with the condition. They can cause bouts of extreme pain and can cause permanent damage to many different organs. There are however, ways to m... Read more

Sickle Cell Disorders are a group of genetic diseases that affect the red blood cells of people with the condition. They can cause bouts of extreme pain and can cause permanent damage to many different organs.  There are however, ways ... Read more

The leaflets below provide details about Sickle Cell and Sickle Cell related information and care. The leaflets below should answer many of your questions and provide useful information about the condition. Click on text to select leaflet... Read more

  What is Sickle Cell Anaemia? This page will give you a brief guide to Sickle Cell Disorders and provide links to more detailed information for different groups of users Contents What is Sickle Cell Anaemia? ... Read more