The Society provides support, care and advice to those in the community affected by Sickle Cell. You may find a number of the information / facts sheets below useful.
There are also Sickle Cell Centres around the country who have support groups who can help you. We have a number of Charitable Funds which have been set up to help people who are in great need. If you wish to apply please complete and send your application to The Society.
Lyamide Thomas, Regional Care Adviser talks about the work the Sickle Cell Society does and how we can help you.
The Ralma Faulkner Welfare Fund
Many people with sickle cell disorders have extra special needs. Keeping warm and dry is essential for preventing crisis, but can prove costly, particularly in the winter. Not everyone can afford these necessities, so the Society has a special welfare fund to assist individuals and their families in need of extra help. Click here for an application form and more information.
The Bryan Jones Educational Fund
The fund was originally set up in 1983 in memory of Bryan Jones, our honorary secretary, who died suddenly that year from internal sickling. He was just 22 years old. Many young people who are affected by sickle cell disorders find their education constantly disrupted by illness. As a result, they often miss out at school or leave school without qualifications, and need extra help to obtain the qualifications they need. The Bryan Jones Educational Fund provides that help, offering financial support for people with sickle cell who need help with their education. Click here for an application form and more information.
The Annual Children’s Holiday
The holiday brings together families who are facing the same challenges in life and children who have a common medical background. The families and children are able to create mutually supportive networks so reducing their social isolation, reducing fear and anxieties. Click here for details and an application form. (Places are limited)