Volunteer Opportunity: Chair of Sickle Cell Society

Volunteer Opportunity: Chair of Sickle Cell Society

Volunteer Opportunity: Chair of Sickle Cell Society

We are looking for a new Chair of Trustees to lead the strategic development of the Sickle Cell Society.

Job Title: Chair of Sickle Cell Society (SCS)

Time commitment: 10 Board meetings per year. Additionally, the Chair is also expected to take part in 1-2 board away days per annum as well as having regular meetings with the Chief Executive, appraising Trustees, and also representing the SCS at various events (eg. fundraising, awareness raising, policy) with key supporters, allies and other stakeholders.

Salary: The role of Chair is not accompanied by any financial remuneration, although expenses for travel may be claimed

Reporting to: Board of Trustees, and additionally, keeping the SCS President up to date on SCS affairs

Location: London

Job Purpose: The Chair will work closely with the trustees and the Chief Executive/Management team to lead the strategic development of the SCS. Significant progress has been made by the SCS over the last 8 years and it is critical that the Chair possesses the correct personal qualities and experience to build future success on the exciting development journey of the Charity. The Chair will also lead effective governance, consistent with the Nolan principles and ensure trustees are accountable individually and collectively for the performance of the board and the success of the organisation. He or she will act as an ambassador and one of the public faces of the charity in partnership with the Chief Executive.

The Chair will also set clear expectations about the Society’s culture, values and behaviours, including setting the style and tone of discussions at board meetings.

To Apply

Before applying, please read the full Job Description and Person Specification: SCS Chair-Job-Description-and-Person-Specification-2021

Then, please complete this Application Form and send it to info@sicklecellsociety.org

Additional Notes:

  • Please make sure that you demonstrate how you are suitable for this role in your application by referring to the person specification.
  • Please note that we do not accept CVs and all applicants must reside in the UK.
  • This post will require a Disclosure and Barring Service (DBS) check at Enhanced Level.

Closing Date: 31st January 2022
Interviews: Wednesday 16th February 2022

About the Sickle Cell Society

The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life. First set up as a registered charity in 1979, the Sickle Cell Society has been working alongside health care professionals, parents, and people living with sickle cell to raise awareness of the disorder. The Society’s aim is to support those living with sickle cell, empowering them to achieve their full potential.

About Sickle Cell Disorder

Sickle cell disorder is a long term inherited condition that causes excruciating pain, can be life threatening, causes multiple problems such as specific severe infections, strokes, chronic fatigue, delayed growth and progressive tissue and organ damage. People are often admitted to hospital when they have a sickle cell crisis, given strong pain killers such as morphine to control the pain, intravenous therapy and antibiotics. Some require regular blood transfusions to help reduce the number of sickle cell crisis as well as prevent life-threatening problems.

  • SCD is inherited from both parents; sickle cell trait is inherited from one parent.
  • SCD mostly, but not exclusively affects people from African and Caribbean backgrounds
  • 1 in 76 babies born in the UK carry sickle cell trait.
  • Approximately 15,000 people in the UK have sickle cell disorder.
  • Approximately 350 babies with SCD are born in the UK every year.
  • A simple blood test will tell whether you have sickle cell trait or the disorder
  • Children with SCD are at increased risk for stroke, the risk is highest between the ages of 2 and 16.
  • Episodes of pain may occur in sickle cell disorder and are generally referred to as a crisis