Vacancy : Advocacy Link Worker

Vacancy : Advocacy Link Worker

We are looking to recruit a Link Worker to join the team to provide advocacy support to patients, and particularly those living in areas of low prevalence of sickle cell disorders.

Post: Advocacy Link Worker for the Sickle Cell Society
Base: Flexible home working
Manages: Responsible for oversight of volunteers to support this project
Hours: 21 hrs per week
Salary: £28,000 (pro rata)
Length of contract: Fixed term, two years (post will be continued subject to the outcome of the pilot and evaluation).

The post holder will work closely with sickle cell patient groups and the local Clinical Nurse Specialist across the project’s footprint to understand patient needs. The role will also necessitate working with local haemoglobinopathy teams (LHT) to increase their engagement with the wider Red Cell Network, including HCC and other clinical members. They will lead on improving sickle cell patients’ experiences, specifically with LHTs, by providing advocacy, education and training. The role will also liaise with commissioners and an external agency for the monitoring and evaluation of the programme and to manage the project budget.

About you

We are seeking an individual with strong communication, networking and advocacy skills to build relationships with key stakeholders including, but not limited to, NHS HCC, a Clinical Nurse Specialist, the Network Steering Group, sickle cell volunteers and sickle cell support groups, local haemoglobinopathy teams (LHT) and sickle cell patients and their family/carers. The Link Worker will connect patients with local community services and information that can help improve their health and wellbeing.

About the North Central London and East Anglia Advocacy Programme

The aim of the Advocacy Project is to address inequity of sickle cell patient care in areas of low prevalence of sickle cell to ensure equal access and support to patients wherever they live. This pilot project will improve patient access to specialised haemoglobinopathy services and therefore information on new and/or relevant therapies, treatments and support available across the North Central London and East Anglia HCC footprint.

About the Sickle Cell Society

We are the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life. We believe that individuals with sickle cell have the right to quality care.

We work alongside health care professionals, parents, and people living with sickle cell to raise awareness of the disorder. Our aim is to support those living with sickle cell, empowering them to achieve their full potential.

Our work seeks to reduce the marginalisation of people with regards to addressing health inequalities they face in living with sickle cell disorders.

To Apply

Full role details can be downloaded here :

SCS Link Worker Job Description

Please complete the forms below, and send them to  , with ‘Advocacy Link Worker’ in the subject line.

SCS Application Form

SCS Equal Opportunities Monitoring Form

Please note all applicants must reside in the UK.

Closing date for applications: Tuesday 25 June

Interview date : Monday 8 July