Rare Disease Day
Sickle Cell Society Joins Discussion with GBT about the Power of Rare Disease Day in... Read More
The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.
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10 Facts about Sickle Cell Disorder
Office Closure – Working from Home
In light of the guidance surrounding coronavirus (COVID-19), the Sickle Cell Society has made the unprecedented decision to close our offices for a provisional two weeks (starting from Monday 16th March). This decision has been made in the best interest of protecting the health and wellbeing of staff, volunteers, service users and stakeholders.
We aim to continue to provide our services as best as possible with staff working from home – Click here to find out more
Coronavirus (COVID-19) & Sickle Cell Disorder
As you have probably seen on the news, COVID-19 is a new illness that can affect your lungs and airways. It’s caused by a virus called coronavirus.
For guidance and advice about coronavirus and sickle cell view our guidance page: www.sicklecellsociety.org/coronavirus-and-scd/
Sickle Cell and Coronavirus (COVID-19) Survey
If you live with sickle cell, or care for someone who does, please consider completing our short survey and help us research the impact of coronavirus: https://tiny.cc/5nbvpz
The survey has been created as part of our work with the Sickle Cell and Thalassaemia All-Party Parliamentary Group.
South London Gives & Give Blood, Spread Love
South London Gives & Give Blood, Spread Love is the Sickle Cell Society’s blood donation awareness project. The project’s goals are to engage individuals and communities from African and Caribbean backgrounds to become aware of the need for ethnically matched blood to treat people with sickle cell disorder.
Online Fundraising
For many people, fundraising online is the easiest way to support the causes you love. We’ve created a range of great options which you can use to support our work. We have broken it down into three categories to help you make the best out of your fundraising.
40th Anniversary Gala Ball
Paediatric Standards
New Updated Edition of ‘Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care’
The 3rd edition of the paediatric standards has just been published to support paediatricians, haematologists, specialist nurses and psychologists, and those responsible for monitoring outcomes i.e. hospital trusts, commissioning authorities and peer-review services.
Download here: www.sicklecellsociety.org/paediatricstandards/
The Sickle Cell Society believes that individuals with sickle cell disorder have the right to quality care.
This can only be achieved if funding is made available to educate health carers and other professionals about the condition. The Society aims to provide this. The Society does not discriminate between the types of sickle cell disorders or the ethnic groups concerned…
Latest News
Dealing with Sickle Cell
🖤…#sicklecellawareness Dealing with sickle cell can be an extremely lonely and isolating experience. Sickle cell... Read More
Afterglow Candles – Charity Partnership
Afterglow Candles are raising money to support sickle cell. Afterglow Candles are run by a doctor-barber... Read More
