Sickle Cell Society - Supporting People Affected by Sickle Cell Disease

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10 Facts about Sickle Cell Disorder

Office Closure – Working from Home

In light of the guidance surrounding coronavirus (COVID-19), the Sickle Cell Society has made the unprecedented decision to close our offices for a provisional two weeks (starting from Monday 16th March). This decision has been made in the best interest of protecting the health and wellbeing of staff, volunteers, service users and stakeholders.

We aim to continue to provide our services as best as possible with staff working from home – Click here to find out more

Coronavirus (COVID-19) & Sickle Cell Disorder

As you have probably seen on the news, COVID-19 is a new illness that can affect your lungs and airways. It’s caused by a virus called coronavirus.

For guidance and advice about coronavirus and sickle cell view our guidance page: www.sicklecellsociety.org/coronavirus-and-scd/

Sickle Cell and Coronavirus (COVID-19) Survey

If you live with sickle cell, or care for someone who does, please consider completing our short survey and help us research the impact of coronavirus: https://tiny.cc/5nbvpz

The survey has been created as part of our work with the Sickle Cell and Thalassaemia All-Party Parliamentary Group.

South London Gives & Give Blood, Spread Love

South London Gives & Give Blood, Spread Love is the Sickle Cell Society’s blood donation awareness project. The project’s goals are to engage individuals and communities from African and Caribbean backgrounds to become aware of the need for ethnically matched blood to treat people with sickle cell disorder.

Click here to find out more

Online Fundraising

For many people, fundraising online is the easiest way to support the causes you love. We’ve created a range of great options which you can use to support our work. We have broken it down into three categories to help you make the best out of your fundraising.

Click here to find out more

40th Anniversary Gala Ball

Paediatric Standards

New Updated Edition of ‘Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care’

The 3rd edition of the paediatric standards has just been published to support paediatricians, haematologists, specialist nurses and psychologists, and those responsible for monitoring outcomes i.e. hospital trusts, commissioning authorities and peer-review services.

Download here: www.sicklecellsociety.org/paediatricstandards/

The Sickle Cell Society believes that individuals with sickle cell disorder have the right to quality care.

This can only be achieved if funding is made available to educate health carers and other professionals about the condition. The Society aims to provide this. The Society does not discriminate between the types of sickle cell disorders or the ethnic groups concerned…