Sickle Cell Society - Supporting People Affected by Sickle Cell Disorder

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No One’s Listening

MPs call for urgent changes to sickle cell care after inquiry finds “serious failings”

An All-Party Parliamentary Group (APPG) inquiry report published today highlights shocking failures as cross-party MPs call for major changes into care for sickle cell patients.

Find out more and read the full report here: www.sicklecellsociety.org/no-ones-listening/

Crizanlizumab – A Simple Guide

For the first time in over 20 years, a new treatment for sickle cell has been made available on the NHS. Crizanlizumab will be made available on the NHS under a Managed Access Agreement (MAA), following the National Institute for Health and Care Excellence’s (NICE) recommendation of crizanlizumab as an option for preventing recurrent sickle cell crises.

Find out more about this new treatment with our simple guide: www.sicklecellsociety.org/crizanlizumab/

Coronavirus (COVID-19) & Sickle Cell Disorder

As you have probably seen on the news, COVID-19 is a new illness that can affect your lungs and airways. It’s caused by a virus called coronavirus.

For guidance and advice about coronavirus and sickle cell view our guidance page: www.sicklecellsociety.org/coronavirus-and-scd/

Give Blood, Spread Love, England

Give Blood, Spread Love, England is the Sickle Cell Society’s blood donation project. We work with black-heritage communities to: raise awareness of the need for ethnically matched blood to treat people with sickle cell; increase levels of confidence in giving blood and recruit new donors to the blood donation register. Click here to find out more

Online Fundraising

For many people, fundraising online is the easiest way to support the causes you love. We’ve created a range of great options which you can use to support our work. We have broken it down into three categories to help you make the best out of your fundraising.

Click here to find out more

The Sickle Cell Society believes that individuals with sickle cell disorder have the right to quality care.

This can only be achieved if funding is made available to educate health carers and other professionals about the condition. The Society aims to provide this. The Society does not discriminate between the types of sickle cell disorders or the ethnic groups concerned…