Helpline
Sickle Cell Society Helpline
Do you have a sickle cell disorder or know someone who does? Are you looking for information, advice or support?
Our Helpline Service provides confidential information, guidance, and emotional support to individuals and families affected by sickle cell living in the UK.
Helpline Service
We are currently having a challenging time with our phoneline. While we work with the tech team to resolve this, please email us if you have any difficulties getting through.
Before calling, please see below the correct number to call for each day of the week.
What can we advise on?
We understand that sickle cell disorders uniquely affect people, and can manifest into a range of further conditions. We also understand that a sickle cell disorder affects the wider social support network. That’s why we support any individual affected by sickle cell, including family members, friends, employers, teachers and healthcare professionals. The topics we cover include:
- Managing a sickle cell disorder
- Social and welfare issues
- Health and education provision
- Housing and benefits entitlement
- Employment support
- Emotional support
- Advocacy
- Accessing services
- Signposting to external agencies and support groups
What can’t we advise on?
Although we can provide information and guidance on managing a sickle cell disorder, we are not medically qualified and are therefore unable to comment on individual health issues. We can, however, explore your options and signpost you to your nearest sickle cell and thalassaemia service.
We cannot provide professional legal advice or legal representation, however we can signpost you to organisations that may be able to help.
The Helpline Service
Helpline: opening hours are :
Mon – Fri 9am – 5pm (except bank holidays)
Mon & Tue: 07842 245 980; Wed: 020 89617795;
Thurs & Fri: 07809736089
If you cannot get through to a member of staff, please don’t leave a message but instead call back later.
You can also use our confidential email service:
We aim to respond to all emails within 5 working days.
Additionally, we have a wide range of information about sickle cell disorders under the resources section and in our FAQs.
Or you can write to us: Helpline Services Team, Sickle Cell Society, 54 Station Road, London NW10 4UA.
Confidentiality
All information shared via telephone and email is confidential. However there are limits to our confidentiality. Read our confidentiality policy.
Have your say
We aim to ensure the best possible helpline experience. In order to achieve this, we rely on your feedback. If you have recently spoken to a helpline officer via the phone or email and would like to comment on how we dealt with your enquiry, please do fill in our short survey. This survey is anonymous, and is made up of a few questions about why you called, how you would rate the support or information received, and whether we helped to make a difference.
Thank you for your help!
Read our complaints and feedback process.
Disclaimer
The helpline service is not a substitute to medical care. Please contact your GP, haematologist, or sickle cell clinical nurse specialist if you have any concerns about your condition or treatments.
