Support Groups

Support Groups

Support groups play a vital part in delivering care for people living with sickle cell and their families. We have created this list so that you can find a support group close to you. Support groups operate independently from the Sickle Cell Society. The list is organised by area:

The North – The Midlands – London – The South – Wales – Scotland

If you run one of these support groups and have noticed that some of the information is incorrect then please email matthew.neal@sicklecellsociety.org with the subject: Support Group. At the bottom of this page there is also a small section on other services. You can also download information on Local Services here.

The North


Bradford Sickle Cell and Thalassaemia Service

Location: Bradford

Address: Manningham Clinic, Lumb Lane, Bradford BD8 7SY

Contact: Sobia Khan

Phone: 01274 730836

Email: Sobia.khan@bradford.nhs.uk 

Website: None


South Yorkshire Sickle Cell Organisation SYSCO

Location: Sheffield

Address: 110-120 The Wicker, Sheffield S3 8JD

Contact: Navlet Reid & Hannah Reid (Operations Manager)

Phone: 01142795793

Email: sysco635@gmail.com / h.reid@sysicklecellorg.co.uk

Website: www.facebook.com/syscosheffield

Additional Information: Office open Tuesday, Wednesday, and Thursday

The Midlands

London


LBBD Sickle Cell & Thalassemia Centre

Location: Barking and Dagenham

Address: Unit 3 & 4, 280 Oxlow Lane, Dagenham. RM10 8LP

Contact: Power House Community Network

Phone: 02085175827

Email: admin@phcn.org.uk

Website: www.phcn.org.uk 


Camden and Islington Sickle Cell and Thalassaemia Centre

Location: Camden and Islington

Address: 17a Hornsey Street, London N7 8GG

Contact: None

Phone: 020 3316 8853 / 8854

Email: sicklethalcandi@nhs.net

Website: None


Guy’s and St Thomas’ NHS Foundation Trust

Location: Southwark

Address: Guy’s Hospital, Great Maze Pond, London, SE1 9RT (Haematology dept, 4th Floor, Southwark wing, Haematology seminar room)

Contact: Mina Abedian

Phone: 020 7188 2718 / 020 7188 7188

Email: mina.abedian@gstt.nhs.uk

Additional Information: Every Tuesday 6pm-7:30pm (except last Tuesday of the month when it is 1pm-2pm). This group is only open to GSTT patients


Sickle Cell & Young Stroke Survivors

Location: Elephant and Castle

Address: Suite R, 7th Floor, Hannibal House, Elephant and Castle, London
SE1 6TE

Contact: Carol Nwosu 

Phone: 08000 842 809

Email: info@scyss.org

Website: www.scyss.org

Additional Information: Specialising in childhood stroke, Moya Moya syndrome and blood transfusions support.


Sickle Cell Cause

Location: Barnet, Edgeware, Enfield, Haringey, and surrounding areas

Address: George Marsh Sickle Cell Centre, St Ann’s Hospital, St Ann’s Road, Tottenham, London N15 3TH

Contact: Samantha Greaves

Phone: 075089085489

Email: sicklecellcause@gmail.com

Website: www.sicklecellcause.com Facebook: www.facebook.com/sicklecellcause/

Additional Information: Sickle Cell Care, Advocacy, Unity, Support with Empathy Group


Solace Support Group

Location: Hackney

Address: 1b Madinah Road, London, E8 1PG

Contact: Courtney King

Phone number: 

Email: info@solacesg.org.uk

Website: http://solacesg.org.uk/


South East London Sickle Cell and Thalassaemia Centre

Location: Kennington

Address: Mary Sheridan Centre, Wooden Spoon House, 5 Dugard Way, off Renfrew Road, Kennington, London, SE11 4TH

Contact: Esther Iffinwa

Phone: 020 3049 5993 

Email: gst-tr.referralstosickle@nhs.net

Website: None


Wandsworth Sickle Cell and Thalassaemia Support Group

Location: Wandsworth

Address: The Office, 15 Broadwater Road, Tooting SW17 0DS 

Contact: Jennifer, Osei 

Phone:  07448240892

Email: wsctsg@btinternet.com

Website: www.wsctsg.org.uk

The South


Essex Sickle Cell Support Group

Location: Essex

Address: 54, Trindehay, Basildon SS15, 5DN

Contact: Ms Vivian Osho

Phone: +44 7576881605

Email: vivianosho@yahoo.co.uk

Website: None


Ipswich Support Group

Location: Ipswich

Address: c/o Karibu, Burlington Hall, Burlington Road, Ipswich, IP1 2EU

Contact: Annetta Bradshaw

Phone: 07845 925756

Email: sicklecellsuffolk@yahoo.com

Website: www.sicklecellsuffolk.org


Sickle Cell and Thalassaemia Services 

Location: Luton

Address: The Poynt, 2-4 Poynters Road, Luton. LU4 0LA

Contact: Maureen Scarlett

Phone: 0333 405 0070

Email: Maureen.scarlett@nhs.net 

Website: None

Wales


Cardiff Sickle Cell and Thalassaemia Centre

Location: Cardiff

Address: Butetown Health Centre, @ Loudoun, Plas Iona, Butetown, Cardiff CF10 5HW

Contact: Annette Blackmore

Phone: 029 2047 1055 / 029 2183 3283

Email: sickle.cell@wales.nhs.uk

Website: www.cardiffandvaleuhb.wales.nhs.uk/sickle-cell-thalassaemia-centre

Additional Information: Open: Monday – Friday 09.00 – 17.00 Hours

Scotland

Other Services

For local services download a list here.


Oscar Birmingham: Organisation for Sickle Cell Anaemia Relief and Thalassaemia Support

Location: Birmingham

Address: Side Entrance, 22 Regent Place, City Centre, Birmingham
B1 3NJ

Contact: Hobby Rahman

Phone: 0121 212 9209

Email: admin@oscarbirmingham.org.uk

Website: www.oscarbirmingham.org.uk