Support Groups

Support Groups, Local Services and Centres

This page provides contact information on support groups, local services and NHS Sickle Cell and Thalassaemia Centres across the UK.

NHS Sickle Cell and Thalassaemia Centres

For the full list of NHS Sickle Cell and Thalassaemia Centres across the UK, as well as national and local voluntary organisations download the PDF by clicking here.

Support groups play a vital part in delivering care for people living with sickle cell and their families. We have created this list so that you can find a support group close to you. Support groups operate independently from the Sickle Cell Society. The list is organised by area:

The North – The Midlands – London – The South – Wales – Scotland

If you run one of these support groups and have noticed that some of the information is incorrect then please email matthew.neal@sicklecellsociety.org with the subject: Support Group. At the bottom of this page there is also a small section on other services.

The North


Bradford Sickle Cell and Thalassaemia Service

Location: Bradford

Address: Manningham Clinic, Lumb Lane, Bradford BD8 7SY

Contact: Sobia Khan

Phone: 01274 730836

Email: Sobia.khan@bradford.nhs.uk 

Website: None


South Yorkshire Sickle Cell Organisation SYSCO

Location: Sheffield

Address: 110-120 The Wicker, Sheffield S3 8JD

Contact: Navlet Reid & Hannah Reid (Operations Manager)

Phone: 01142795793

Email: sysco635@gmail.com / h.reid@sysicklecellorg.co.uk

Website: www.facebook.com/syscosheffield

Additional Information: Office open Tuesday, Wednesday, and Thursday

The Midlands

London


LBBD Sickle Cell & Thalassemia Centre

Location: Barking and Dagenham

Address: Unit 3 & 4, 280 Oxlow Lane, Dagenham. RM10 8LP

Contact: Power House Community Network

Phone: 02085175827

Email: admin@phcn.org.uk

Website: www.phcn.org.uk 


Camden and Islington Sickle Cell and Thalassaemia Centre

Location: Camden and Islington

Address: 17a Hornsey Street, London N7 8GG

Contact: None

Phone: 020 3316 8853 / 8854

Email: sicklethalcandi@nhs.net

Website: None


Guy’s and St Thomas’ NHS Foundation Trust

Location: Southwark

Address: Guy’s Hospital, Great Maze Pond, London, SE1 9RT (Haematology dept, 4th Floor, Southwark wing, Haematology seminar room)

Contact: Mina Abedian

Phone: 020 7188 2718 / 020 7188 7188

Email: mina.abedian@gstt.nhs.uk

Additional Information: Every Tuesday 6pm-7:30pm (except last Tuesday of the month when it is 1pm-2pm). This group is only open to GSTT patients


Sickle Cell & Young Stroke Survivors

Location: Elephant and Castle

Address: Suite R, 7th Floor, Hannibal House, Elephant and Castle, London
SE1 6TE

Contact: Carol Nwosu 

Phone: 08000 842 809

Email: info@scyss.org

Website: www.scyss.org

Additional Information: Specialising in childhood stroke, Moya Moya syndrome and blood transfusions support.


Sickle Cell Cause

Location: Barnet, Edgeware, Enfield, Haringey, and surrounding areas

Address: George Marsh Sickle Cell Centre, St Ann’s Hospital, St Ann’s Road, Tottenham, London N15 3TH

Contact: Samantha Greaves

Phone: 075089085489

Email: sicklecellcause@gmail.com

Website: www.sicklecellcause.com Facebook: www.facebook.com/sicklecellcause/

Additional Information: Sickle Cell Care, Advocacy, Unity, Support with Empathy Group


Solace Support Group

Location: Hackney

Address: 1b Madinah Road, London, E8 1PG

Contact: Courtney King

Phone number: 

Email: info@solacesg.org.uk

Website: http://solacesg.org.uk/


South East London Sickle Cell and Thalassaemia Centre

Location: Kennington

Address: Mary Sheridan Centre, Wooden Spoon House, 5 Dugard Way, off Renfrew Road, Kennington, London, SE11 4TH

Contact: Esther Iffinwa

Phone: 020 3049 5993 

Email: gst-tr.referralstosickle@nhs.net

Website: None


Wandsworth Sickle Cell and Thalassaemia Support Group

Location: Wandsworth

Address: The Office, 15 Broadwater Road, Tooting SW17 0DS 

Contact: Jennifer, Osei 

Phone:  07448240892

Email: wsctsg@btinternet.com

Website: www.wsctsg.org.uk

The South


Essex Sickle Cell Support Group

Location: Essex

Address: 54, Trindehay, Basildon SS15, 5DN

Contact: Ms Vivian Osho

Phone: +44 7576881605

Email: vivianosho@yahoo.co.uk

Website: None


Ipswich Support Group

Location: Ipswich

Address: c/o Karibu, Burlington Hall, Burlington Road, Ipswich, IP1 2EU

Contact: Annetta Bradshaw

Phone: 07845 925756

Email: sicklecellsuffolk@yahoo.com

Website: www.sicklecellsuffolk.org


Sickle Cell and Thalassaemia Services 

Location: Luton

Address: The Poynt, 2-4 Poynters Road, Luton. LU4 0LA

Contact: Maureen Scarlett

Phone: 0333 405 0070

Email: Maureen.scarlett@nhs.net 

Website: None

Wales


Cardiff Sickle Cell and Thalassaemia Centre

Location: Cardiff

Address: Butetown Health Centre, @ Loudoun, Plas Iona, Butetown, Cardiff CF10 5HW

Contact: Annette Blackmore

Phone: 029 2047 1055 / 029 2183 3283

Email: sickle.cell@wales.nhs.uk

Website: www.cardiffandvaleuhb.wales.nhs.uk/sickle-cell-thalassaemia-centre

Additional Information: Open: Monday – Friday 09.00 – 17.00 Hours

Scotland

Other Services

For local services download a list here.


Oscar Birmingham: Organisation for Sickle Cell Anaemia Relief and Thalassaemia Support

Location: Birmingham

Address: Side Entrance, 22 Regent Place, City Centre, Birmingham
B1 3NJ

Contact: Hobby Rahman

Phone: 0121 212 9209

Email: admin@oscarbirmingham.org.uk

Website: www.oscarbirmingham.org.uk