This page provides contact information on support groups, local services and NHS Sickle Cell and Thalassaemia Centres across the UK.
The PDF includes contact details for:
Centres across the UK
Coordinators/Lecturers Specialist Courses
National Voluntary Organisations
Local Voluntary Groups
The list is updated by Maureen Scarlett STANMAP Secretary (Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals). Find out more here: https://stanmap.org.uk/
HCCs are responsible for coordinating, supporting and promoting a system-wide networked approach to the delivery of haemoglobinopathy services. HCCs aim to support hospitals in their area who have less expertise in these conditions, to make sure all patients have access to specialist advice when needed. This will involve offering training and advice to less experienced hospitals.
Below is the full list of Sickle Cell Disease Haemoglobinopathies Coordinating Centres (HCCs):
You can see the full list of HCCs including sickle cell and thalassaemia, the National Haemoglobinopathy Panel (NHP), and Specialist Haemoglobinopathies Teams (SHTs) here: Specialised Haemoglobinopathy Services
Support groups play a vital part in delivering care for people living with sickle cell and their families. We have created this list so that you can find a support group close to you. Support groups operate independently from the Sickle Cell Society. The list is organised by area:
If you run one of these support groups and have noticed that some of the information is incorrect then please email firstname.lastname@example.org with the subject: Support Group. At the bottom of this page there is also a small section on other services.
For local services download a list here.