This page provides contact information on support groups, local services and NHS Sickle Cell and Thalassaemia Centres across the UK.
We have collected together a list of sickle cell and thalassaemia centres and services across the UK. Click here or on the image to download the PDF. The list contains:
This list is an excerpt from ‘A Parent’s Guide to Managing Sickle Cell Disease’ (4th Edition 2021). The full document can be found here: www.sicklecellsociety.org/publicationlaunch/
More information on the sickle cell and thalassaemia services can be found at the STANMAP (Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals) website: https://stanmap.org.uk/
HCCs are responsible for coordinating, supporting and promoting a system-wide networked approach to the delivery of haemoglobinopathy services. HCCs aim to support hospitals in their area who have less expertise in these conditions, to make sure all patients have access to specialist advice when needed. This will involve offering training and advice to less experienced hospitals.
Below is the full list of Sickle Cell Disease Haemoglobinopathies Coordinating Centres (HCCs):
You can see the full list of HCCs including sickle cell and thalassaemia, the National Haemoglobinopathy Panel (NHP), and Specialist Haemoglobinopathies Teams (SHTs) here: Specialised Haemoglobinopathy Services
Support groups play a vital part in delivering care for people living with sickle cell and their families. We have created this list so that you can find a support group close to you. Support groups operate independently from the Sickle Cell Society. The list is organised by area:
If you run one of these support groups and have noticed that some of the information is incorrect then please email firstname.lastname@example.org with the subject: Support Group. At the bottom of this page there is also a small section on other services.
For local services download a list here.