Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care [Draft]

Parents and Young people, give your feedback on the new draft Paediatric Standards

The Sickle Cell Society is collaborating with clinicians and other health professionals to update the second edition of the publication:  ‘Sickle cell disease in childhood – standards and guidelines for clinical care and we want the views of parents of children with sickle cell as well as some older children with sickle cell still under paediatric care. These standards are to ensure that every child has access to the same quality of care wherever they live in the UK and you can help us do this.

How can you help?

  1. Please see below to review the draft executive summary of the publication
  2. After reading the documents go to this link and complete the feedback form: https://surveys.phe.org.uk/consultationforserviceusers

The survey closes at 5pm on Monday 12th August 2019 but please give us your feedback as soon as you can. Thanks!

For Queries:

Email: iyamide.thomas@sicklecellsociety.org