On Saturday 9th February 2019, I partnered with our South London Link team, at their Canada Water to trial the ‘Sickle Cell Journal’ that I am currently in the process of creating, in order to get some real feedback from potential users.
Through my work with our young service users I identified a huge need for something that would enable them to combine an understanding of their triggers, early warning signs or symptoms, and wellness strategies. And thought the journal would be a good solution for this.
Although the journal was originally aimed at young people, it was huge success with the adults and medical professionals who attended on the day.
They even suggested the following to make it suitable for them and hospital visits:
- A pocket inserts to enable them to keep hospital letters inside the journal.
- A habit tracker to monitor the intake of medicine and water consumed.
- Stick figures to allow the younger children to colour in where they felt pain.
- An A5 & A4 size versions
- A Child & Parent version.
Overall the feedback was outstanding, and all the participants have agreed to test up until our next workshop on 23rd March 2019 Canada Water Library.
To book your place please use the following link; https://www.sicklecellsociety.org/scsll/
In the mean time be sure to download the journal if you too would like to test it out, as all feedback is very welcomed.
Feel free to contact me at firstname.lastname@example.org for more information.