Inquiry into Sickle Cell Care: Evidence Sessions

APPG | News
08 Jun 2021

Inquiry into Sickle Cell Care: Evidence Sessions

Inquiry into Sickle Cell Care: Evidence Sessions

In May we launched a call for evidence for our Inquiry into Sickle Cell Care

The inquiry looks to examine the care sickle cell patients receive, seek to identify why care for sickle cell patients is too often sub-standard, and look to ensure that recent tragic cases lead to national change to ensure that such failings are not repeated in future.
The SCTAPPG will be holding three sessions to present the evidence of our findings (including written and oral reports from people living with sickle cell, family members, healthcare professionals and researchers):
  • Evidence Session 1: 9th June 3pm-4:30pm
  • Evidence Session 2: 16th June 2pm-3:30pm
  • Evidence Session 3: 30th June 2pm-3:30pm

You are invited to come and listen to evidence for the Inquiry into Sickle Cell Care as it is presented to the Sickle Cell and Thalassaemia All-Party Parliamentary Group. Click here to register your interest.

Find more information about the inquiry below:

All-Party Parliamentary Group on Sickle Cell and Thalassaemia: Terms of reference for inquiry into sickle cell care

Introduction and background:

Recent high-profile examples of failings in care for people with sickle cell disease have led to growing awareness of the challenges sickle cell patients still too often face in receiving appropriate care. It is clear from testimony from healthcare professionals, sickle cell patients and their families over many years that these recent high-profile cases are not isolated incidents.

This inquiry by the All-Party Parliamentary Group on Sickle Cell and Thalassaemia will examine the care sickle cell patients receive, seek to identify why care for sickle cell patients is too often sub-standard, and look to ensure that recent tragic cases lead to national change to ensure that such failings are not repeated in future.

About the inquiry:

The inquiry will be chaired by APPG on Sickle Cell and Thalassaemia Chair Pat McFadden MP, with participation from the group’s officers and other interested parliamentarians. The inquiry will take evidence on sickle cell care from patients, patients’ family members, clinicians, commissioners and other relevant stakeholders and produce a report that will make specific recommendations for action by the Department of Health and Social Care, NHS England, the Nursing and Midwifery Council and others.

In order to gather this evidence, the APPG is inviting submissions of written evidence and will hold two meetings in June 2021 to receive oral evidence, with the first taking place on Wednesday 9th June 2021. This evidence will form the basis for the APPG’s report and recommendations.

The secretariat for the APPG on Sickle Cell and Thalassaemia is provided by the Sickle Cell Society, who will support the APPG with organising the inquiry, collating and analysis evidence and producing the final report.