Launch of New Sickle Cell & Thalassaemia Publications

Launch of New Sickle Cell & Thalassaemia Publications

Launch of New Sickle Cell & Thalassaemia Publications

The Sickle Cell Society as part of a collaborative project with the NHS Sickle Cell & Thalassaemia Screening Programme and UK Thalassaemia Society have produced three new publications to be launched on Thursday 28th January 2021. These are:

  • ‘A Parent’s Guide to Managing Sickle Cell Disease’ (4th Edition 2021) – ‘Parents Handbok’
  • ‘Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care’ (3rd Edition 2019) – ‘Paediatric Standards’
  • ‘Sickle Cell & Thalassaemia Counselling, Knowledge & Skills Guidelines’ (2020)

 

‘A Parent’s Guide to Managing Sickle Cell Disease’ (4th Edition 2021) – ‘Parents Handbook’

The new edition of the Parents Handbook will be available online shortly.

Until then, the previous edition is available to download here: www.sicklecellsociety.org/resource/parentsguide/

Hard copies of the ‘Parents Guide’ should be available by mid-February as soon as we confirm how best to distribute during the pandemic.


Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care’ (3rd Edition 2019) – ‘Paediatric Standards’

You can download the 3rd edition of the Paediatric Standards here.

You can also find the Executive Summary available to download at the link above.

Hard copies of the ‘Paediatric Standards’ should be available by mid-February as soon as we confirm how best to distribute during the pandemic.


‘Sickle Cell & Thalassaemia Counselling, Knowledge & Skills Guidelines’ (2020)

The Sickle Cell & Thalassaemia Counselling, Knowledge & Skills Guidelines can be accessed here:

https://www.gov.uk/government/publications/sickle-cell-and-thalassaemia-counselling-knowledge-and-skills