The Global Burden of Sickle Cell Disease: Findings from Sickle Cell World Assessment Survey (SWAY)
To uncover the global impact of sickle cell disease, Novartis conducted the Sickle Cell World Assessment Survey (SWAY) which collected insights from over 2,100 patients and 360 health care providers to evaluate the impact of the disease on patients and families and help inform the management of this life-long condition.
Results of the survey underscored the debilitating and often under-reported effects of sickle cell disease, and a pattern of not seeking care despite potentially life-threatening symptoms. Leading experts in the space discuss the survey findings and the impact on individuals living with sickle cell disease.
Find out more about the results of the survey here: https://www.sicklecellsociety.org/globalsurvey/