Spring Newsletter 2022

Treatment of Sickle Cell (Westminster Hall Debate) On Wednesday 8th December, the Rt Hon Pat... Read More

Coronavirus and Sickle Cell Live Q&A Friday 5th November 2021 Over a year on from... Read More

Sickle Cell Patient’s ‘Excruciating’ Wait for Pain Drugs: BBC South East Sickle cell patient, John... Read More

42nd Annual General Meeting 2021 On Saturday 11th September 2021, we joined with our members... Read More

Turn up the Volume (Spoken Word Event) On Friday 4th June the Sickle Cell Society’s... Read More

APPG Hearing on access to medicines hearing On Wednesday 28th April 2021 the All-Party Parliamentary... Read More

Tribute To Richard Okorogheye (‘Your Voice’ on Yanga TV) Our NHS Engagement Lead, Iyamide Thomas,... Read More

Sickle Cell World Assessment Survey (SWAY) – A Discussion Watch an in depth discussion on... Read More

In Conversation with Professor Dame Elizabeth Anionwu Come and join us for a conversation around... Read More

Charity Walk for Sickle Cell Willesden Walk for the Mayor of Brent’s Charities – Sickle... Read More

Sickle Cell Workout with @sicklefitkech The Sickle Cell Society’s Hackney Engagement Project have partnered with... Read More

BBC London: Sickle Cell and Rare Diseases Lead Sickle Cell Mentor, June Okochi, speaks on... Read More

Getting the COVID-19 Vaccine: Sickle Cell Patient Stories We joined with Dr Rachel Kesse-Adu (consultant... Read More

Sickle Cell, COVID-19 & Vaccination (Presentation and Q&A) On Wednesday 27th January 2021 we joined... Read More

Learn about the COVID-19 Vaccine with Dr Anna Goodman We talked with Dr Anna Goodman,... Read More

Sickle Cell: The Global Perspective (World Sickle Cell Day Webinar) On Friday 19th June 2020,... Read More

Know Our Patients (KOP) Sickle Cell Personal Experiences Listen to the personal sickle cell experiences... Read More

Tell Your Story Over half term (31st October), the Our Journey, Our Story project conducted... Read More

Parent’s Panel 2 – Hackney Engagement Project The third installment of the Hackney Engagement Project’s... Read More

Virtual Children’s Holiday 2020 On Friday 14th August to Sunday 16th August we hosted our... Read More

Layla & Suki – Blood Donors Save My Life (SCS & NHSBT) Mum of one... Read More

Men’s Panel – Hackney Engagement Project The second of the Hackney Engagement Project’s sickle cell... Read More

The Sickle Cell Society’s third Coronavirus (COVID-19) and Sickle Cell Live Q&A took place on:... Read More

Sickle Cell Society AGM 2020 (Virtual) The 41st Annual General Meeting (AGM) of the Sickle... Read More

Parent’s Panel – Hackney Engagement Project The first of the Hackney Engagement Project’s sickle cell... Read More

  1ne – Episodes ft. J Auburn (S ickle Cell Song) 1ne (@SoulBrother1ne) is a... Read More

The Sickle Cell Society’s second Coronavirus (COVID-19) and Sickle Cell Live Q&A took place on... Read More

Coronavirus and Sickle Cell Live Q&A – 15th May 2020 The Sickle Cell Society’s first... Read More

Sickle Cell Children’s Holiday 2019 Highlights from the 2019 Sickle Cell Society Annual Children’s Holiday.... Read More

The Global Burden of Sickle Cell Disease: Findings from Sickle Cell World Assessment Survey (SWAY)... Read More

Professor Dame Elizabeth Anionwu at Mayor of Brent’s Festive Fundraiser Sickle Cell Society patron, Professor... Read More

The Path to Parliament In June, Courteney spoke in Parliament about her experience of living... Read More

Trance An animation about sickle cell disease. Director: Luxi Rong Sound Designer: Evangelos Markou Writer:... Read More

Portraits of Pain Portraits of Pain is a short film by June Okochi exploring what... Read More

Mayor of Brent Donates Blood 40,000 black blood donors needed to help save lives The... Read More

Global’s Make Some Noise // Sickle Cell Society on Capital FM Breakfast Global’s Make Some... Read More

The Untold Stories of Sickle Cell – Teonna’s Story Teonna is 27 years old. She... Read More

Miai on Capital FM A young girl named Miai shares her story about living with... Read More

The Untold Stories of Sickle Cell – Emmanuel Emmanuel is 41 years old. He grew... Read More

Our NHS Engagement lead, Iyamide Thomas, in the Omega Live TV studio to discuss sickle... Read More

Miai & Ama – Sickle Cell Disease – A video by NHS Give Blood Miai... Read More