Spring Newsletter 2021
Spring Newsletter 2021 In this Spring edition of our newsletter, view our COVID-19 report, the... Read More
In Conversation with Professor Dame Elizabeth Anionwu
In Conversation with Professor Dame Elizabeth Anionwu Come and join us for a conversation around... Read More
Sickle Cell Talks With Agnes Presents: Tola Dehinde
Sickle Cell Talks With Agnes Presents: Tola Dehinde Agnes Nsofwa, the CEO of Australia Sickle... Read More
Charity Walk for Sickle Cell
Charity Walk for Sickle Cell Willesden Walk for the Mayor of Brent’s Charities – Sickle... Read More
Sickle Cell Workout with @sicklefitkech
Sickle Cell Workout with @sicklefitkech The Sickle Cell Society’s Hackney Engagement Project have partnered with... Read More
BBC London: Sickle Cell and Rare Diseases
BBC London: Sickle Cell and Rare Diseases Lead Sickle Cell Mentor, June Okochi, speaks on... Read More
Getting the COVID-19 Vaccine: Sickle Cell Patient Stories
Getting the COVID-19 Vaccine: Sickle Cell Patient Stories We joined with Dr Rachel Kesse-Adu (consultant... Read More
Sickle Cell, COVID-19 & Vaccination (Presentation and Q&A)
Sickle Cell, COVID-19 & Vaccination (Presentation and Q&A) On Wednesday 27th January 2021 we joined... Read More
Learn about the COVID-19 Vaccine with Dr Anna Goodman
Learn about the COVID-19 Vaccine with Dr Anna Goodman We talked with Dr Anna Goodman,... Read More
Sickle Cell: The Global Perspective (World Sickle Cell Day Webinar)
Sickle Cell: The Global Perspective (World Sickle Cell Day Webinar) On Friday 19th June 2020,... Read More
Know Our Patients (KOP) Sickle Cell Personal Experiences
Know Our Patients (KOP) Sickle Cell Personal Experiences Listen to the personal sickle cell experiences... Read More
Autumn Newsletter 2020
Autumn Newsletter 2020 In this Autumn edition of our newsletter, see our letter to the Prime... Read More
Tell Your Story
Tell Your Story Over half term (31st October), the Our Journey, Our Story project conducted... Read More
Parent’s Panel 2 – Hackney Engagement Project
Parent’s Panel 2 – Hackney Engagement Project The third installment of the Hackney Engagement Project’s... Read More
Virtual Children’s Holiday 2020
Virtual Children’s Holiday 2020 On Friday 14th August to Sunday 16th August we hosted our... Read More
Layla and Suki – Blood Donors Save My Life (SCS & NHSBT)
Layla & Suki – Blood Donors Save My Life (SCS & NHSBT) Mum of one... Read More
Turn up the Volume on Blood Donation
‘Give Blood, Spread Love, England’ The Sickle Cell Society’s blood donation project is now registering... Read More
Men’s Panel – Hackney Engagement Project
Men’s Panel – Hackney Engagement Project The second of the Hackney Engagement Project’s sickle cell... Read More
Coronavirus and Sickle Cell Live Q&A – 11th September 2020
The Sickle Cell Society’s third Coronavirus (COVID-19) and Sickle Cell Live Q&A took place on:... Read More
Sickle Cell Society AGM 2020 (Virtual)
Sickle Cell Society AGM 2020 (Virtual) The 41st Annual General Meeting (AGM) of the Sickle... Read More
Impact Report 2019/20
2019/20 Impact Report The 2019/20 Impact Report is a shorter and easier to read version... Read More
Parent’s Panel – Hackney Engagement Project
Parent’s Panel – Hackney Engagement Project The first of the Hackney Engagement Project’s sickle cell... Read More
1ne – Episodes ft. J Auburn (Sickle Cell Song)
1ne – Episodes ft. J Auburn (S ickle Cell Song) 1ne (@SoulBrother1ne) is a... Read More
Coronavirus and Sickle Cell Live Q&A – 5th June 2020
The Sickle Cell Society’s second Coronavirus (COVID-19) and Sickle Cell Live Q&A took place on... Read More
Coronavirus and Sickle Cell Live Q&A – 15th May 2020
Coronavirus and Sickle Cell Live Q&A – 15th May 2020 The Sickle Cell Society’s first... Read More
Spring Newsletter 2020
Spring Newsletter 2020 In this Spring edition of our newsletter, see the highlights from the... Read More
Sickle Cell Children’s Holiday 2019
Sickle Cell Children’s Holiday 2019 Highlights from the 2019 Sickle Cell Society Annual Children’s Holiday.... Read More
Sickle Cell Work and Employment: Final Report
Barriers and Enablers to Employment: Black Disabled Peoples Living with Sickle Cell Disorder Project SUMMARY... Read More
Findings from Sickle Cell World Assessment Survey (SWAY)
The Global Burden of Sickle Cell Disease: Findings from Sickle Cell World Assessment Survey (SWAY)... Read More
Professor Dame Elizabeth Anionwu at Mayor of Brent’s Festive Fundraiser
Professor Dame Elizabeth Anionwu at Mayor of Brent’s Festive Fundraiser Sickle Cell Society patron, Professor... Read More
Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care
Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care This third edition of... Read More
The Path to Parliament
The Path to Parliament In June, Courteney spoke in Parliament about her experience of living... Read More
Portraits of Pain
Portraits of Pain Portraits of Pain is a short film by June Okochi exploring what... Read More
Mayor of Brent Donates Blood
Mayor of Brent Donates Blood 40,000 black blood donors needed to help save lives The... Read More
Global’s Make Some Noise // Sickle Cell Society on Capital FM Breakfast
Global’s Make Some Noise // Sickle Cell Society on Capital FM Breakfast Global’s Make Some... Read More
The Untold Stories of Sickle Cell – Teonna’s Story
The Untold Stories of Sickle Cell – Teonna’s Story Teonna is 27 years old. She... Read More
Miai on Capital FM
Miai on Capital FM A young girl named Miai shares her story about living with... Read More
Autumn Newsletter 2019
Autumn Newsletter In this special edition of our newsletter: 40 Highlights from 40 Years, End... Read More
The Untold Stories of Sickle Cell – Emmanuel
The Untold Stories of Sickle Cell – Emmanuel Emmanuel is 41 years old. He grew... Read More
Sickle Cell Work and Employment
Sickle Cell Work and Employment Sickle Cell Work and Employment – A Guide for Employers and... Read More
Impact Report 2018/19
2018/19 Impact Report The 2018/19 Impact Report is a shorter and easier to read version... Read More
Omega Live TV Interview
Our NHS Engagement lead, Iyamide Thomas, in the Omega Live TV studio to discuss sickle... Read More
A Parent’s Guide to Managing Sickle Cell Disease
If you are told your child has sickle cell disease you will probably have lots... Read More
Spring Newsletter 2019
In our Spring edition newsletter you can read about the Sickle Cell Society’s 40th Anniversary,... Read More
What is Sickle Cell Disease?
What is Sickle Cell Disease? Click here to download the full booklet
Le SavaisTu? Âges 5-10
Le SavaisTu? Âges 5-10 Download here
Le Savais-Tu? Ages 11-16
Le Savais-Tu? Ages 11-16 Download here
Distúrbio da célula falciforme e Portador da célula falciforme
Distúrbio da célula falciforme e Portador da célula falciforme Download here
La Drépanocytose et Le Trait drépanocytaire
La Drépanocytose et Le Trait drépanocytaire Download here
Vamos falar sobre Célula falciforme
Vamos falar sobre Célula falciforme Download here
Parlons de la Drépanocytose
Parlons de la Drépanocytose Download here
Sabia que? Idades 11-16 anos
Sabia que? Idades 11-16 anos Download here
Sabia Que? Idades 5-10 anos
Sabia Que? Idades 5-10 anos Download here
Helpline Leaflet
Sickle Cell Helpline Leaflet Check out our Helpline leaflet all about our Helpline service, Children’s... Read More
Miai & Ama – Sickle Cell Disease
Miai & Ama – Sickle Cell Disease – A video by NHS Give Blood Miai... Read More
SIKUL SEL Song – Sierra Leone
Sikul Sel Song – by pupils from a Sierra Leone school and Sam Macauley Sikul... Read More
Autumn Newsletter 2018
Autumn Newsletter 2018 The Sickle Cell Society Autumn Newsletter is now out! This issue is... Read More
Hope for Sickle Cell
Hope for Sickle Cell Tinu lives with sickle cell disorder. She and her doctor, Dr... Read More
Sickle Cell Society: GSK IMPACT Awards
Sickle Cell Society: GSK IMPACT Awards This video was developed as part of the award... Read More
Sickle Cell Service Review – Facebook Live
Sickle Cell Service Review – Facebook Live A Facebook Live with NHS England to discuss... Read More
My Name is Jacob
My Name is Jacob Nine year old Jacob talks about his life with sickle cell,... Read More
BBC Breakfast: Gaps in sickle cell care and awareness
BBC Breakfast: Gaps in sickle cell care and awareness Noel Phillips asks sickle cell patients,... Read More
Children’s Holiday 2016
A video from our Children’s Holiday in 2016. Every year we run a children’s holiday... Read More
Impact Report 2017/18
For the first year ever the Society are proud to present the 2017/18 Impact Report.... Read More
Parents’ Stories
Parents’ Stories You can download the full Parents’ Stories here You can find out more... Read More
Standards for the Clinical Care of Adults with Sickle Cell Disease in the UK – 2018
The Sickle Cell Society in partnership with the UK Forum on Haemoglobin Disorders are proud... Read More
Winter Newsletter 2018
2017 has been a positive year. Despite austerity, uncertainty and lots of challenges in securing... Read More
Order Sickle Cell Society pin badges, place cards and wristbands!
John James shows off his Sickle Cell Society pin, as the mayors of Southwark and... Read More
2017 Children’s Holiday Information Book
This information booklet is for parents and carers of children attending our 2017 Children’s Holiday.... Read More
SCS Newsletter Summer 2017
Our summer newsletter is here, and we have all the exciting stories. Read all about... Read More
ASH Pocket Guides for healthcare professionals
The American Society of Hematology has produced three “pocket guides” on sickle cell. These are... Read More
SCS Newsletter Winter 2016
The Sickle Cell Society’s Winter 2016 newsletter is now available! Read all about the 2016... Read More
Piloting a new Patient Reported Experience Measure for Sickle Cell Disease: A Report of the Findings
First nationwide sickle cell survey identifies awareness as key to healthcare improvement Results published from... Read More
Sickle Cell Disorder and Sickle Cell Trait
Sickle Cell Disorder And Sickle Cell Trait is a short leaflet explaining key points about... Read More
Pain management guidelines for sickle cell
The Sickle Cell Society helped develop these most recent guidelines for management of pain crises... Read More
Standards for the Clinical Care of Adults with Sickle Cell Disease in the UK
For the latest edition of the Sickle Cell Standards click this link: www.sicklecellsociety.org/sicklecellstandards/ ... Read More
SCS Newsletter Winter 2015
Our Winter 2015 newsletter is now available! From a report on our Children’s Holiday, to... Read More
Sickle Cell: The History, Legacy and Achievements
Highlights from the Sickle Cell Society’s Black History Month event in 2015. The theme was... Read More
Travel insurance for sickle cell
This list is collated from experiences of people with sickle cell, who have found these... Read More