Support Groups

This page provides contact information on support groups, local services and NHS Sickle Cell and Thalassaemia Centres across the UK.

Sickle Cell and Thalassaemia Centres and Services

We have collected together a list of sickle cell and thalassaemia centres and services across the UK. Click here or on the image to download the PDF. The list contains:

  • Centres in Greater London
  • Centres outside London
  • Patient Support Groups and Voluntary Organisations
  • Other useful Contacts

This list is an excerpt from ‘A Parent’s Guide to Managing Sickle Cell Disease’ (4th Edition 2021). The full document can be found here:

More information on the sickle cell and thalassaemia services can be found at the STANMAP (Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals) website:

Haemoglobinopathies Coordinating Centres (HCCs)

HCCs are responsible for coordinating, supporting and promoting a system-wide networked approach to the delivery of haemoglobinopathy services. HCCs aim to support hospitals in their area who have less expertise in these conditions, to make sure all patients have access to specialist advice when needed. This will involve offering training and advice to less experienced hospitals.

Below is the full list of Sickle Cell Disease Haemoglobinopathies Coordinating Centres (HCCs):

  • North West: Manchester University NHS Foundation Trust
  • North East and Yorkshire: Sheffield Teaching Hospitals NHS Foundation Trust
  • East Midlands: University Hospitals of Leicester NHS Trust
  • West Midlands: Contract currently being finalised with Trust – check back for updates
  • East London and Essex: Barts Health NHS Trust
  • South East London and South East: King’s College Hospital NHS Foundation Trust
  • West London: Imperial College Healthcare NHS Trust
  • North Central London and East Anglia: University College London Hospitals NHS Foundation Trust
  • Wessex and Thames Valley: Oxford University Hospitals NHS Foundation Trust
  • South West: University Hospitals Bristol NHS Foundation Trust

You can see the full list of HCCs including sickle cell and thalassaemia, the National Haemoglobinopathy Panel (NHP), and Specialist Haemoglobinopathies Teams (SHTs) here: Specialised Haemoglobinopathy Services

Support Groups 

Support groups play a vital part in delivering care for people living with sickle cell and their families. We have created this list so that you can find a support group close to you. Support groups operate independently from the Sickle Cell Society. The list is organised by area:

The North – The Midlands – London – The South – Wales – Scotland

If you run one of these support groups and have noticed that some of the information is incorrect then please email with the subject: Support Group. At the bottom of this page there is also a small section on other services.

The North

Bradford Sickle Cell and Thalassaemia Service

Location: Bradford

Address: Manningham Clinic, Lumb Lane, Bradford BD8 7SY

Contact: Sobia Khan

Phone: 01274 730836


Website: None

The Liverpool Sickle Cell and Thalassaemia Support Group

Location: Liverpool

Address: Abercronby Health Centre, Grove Street, Liverpool, L7 7HG

Contact: Vee Sibanda and Funmi Dairo

Phone: 07739731431 or 07586433434


Additional Information: Meeting held last Friday of the month – 5pm-7pm

Sickle Cell Care Manchester

Location: Manchester

Address: City View House, 5 Union Street, Ardwick Green, Manchester, M12 4JD

Contact: Anthony Mason

Phone: 0161 277 7648



South Yorkshire Sickle Cell Organisation SYSCO

Location: Sheffield

Address: 110-120 The Wicker, Sheffield S3 8JD

Contact: Navlet Reid & Hannah Reid (Operations Manager)

Phone: 01142795793

Email: /


Additional Information: Office open Tuesday, Wednesday, and Thursday

The Midlands


LBBD Sickle Cell & Thalassemia Centre

Location: Barking and Dagenham

Address: Unit 3 & 4, 280 Oxlow Lane, Dagenham. RM10 8LP

Contact: Power House Community Network

Phone: 02085175827



Camden and Islington Sickle Cell and Thalassaemia Centre

Location: Camden and Islington

Address: 17a Hornsey Street, London N7 8GG

Contact: None

Phone: 020 3316 8853 / 8854


Website: None

Red Cells R Us

Location: Camden and Islington

Address: Sickle Cell and Thalassaemia Centre, 17a Hornsey Street, London N7 8GG

Contact: Calvin Campbell


Additional Information: The group meets on the first Friday of the month unless there is a change. They have guest speakers giving advice on a wide range of topics. All are welcome to attend; adults, families and family members.

Ealing, Hammersmith & Fulham Sickle Cell & Thalassemia Support Group

Location: Acton

Address: Ruskin Hall, 16 Church Road, Acton London W3 8PP

Phone: 0793 223 6544



Additional Information: Meetings held monthly

Croydon Sickle Cell & Thalassaemia Support Group

Location: Croydon

Address: 316 – 320 Whitehorse Road, Croydon, CR0 2LE

Phone:0208 251 7259, 07305 599465



Sickle Cell Cause

Location: Barnet, Edgeware, Enfield, Haringey, and surrounding areas

Address: George Marsh Sickle Cell Centre, St Ann’s Hospital, St Ann’s Road, Tottenham, London N15 3TH

Contact: Samantha Greaves

Phone: 075089085489


Website: Facebook:

Additional Information: Sickle Cell Care, Advocacy, Unity, Support with Empathy Group

Sickle Plus 

Location: London Earls Court

Address: SP 39 Miles Building Penfold Place London NW1 6RG

Contact: M.s Williams

Phone number: +44 07860145884 / +44 07808710114



Additional Information: Monday – Friday 09:00–17:00

Solace Support Group

Location: Hackney

Address: 1b Madinah Road, London, E8 1PG

Contact: Courtney King

Phone number: 



South East London Sickle Cell and Thalassaemia Centre

Location: Kennington

Address: Mary Sheridan Centre, Wooden Spoon House, 5 Dugard Way, off Renfrew Road, Kennington, London, SE11 4TH

Contact: Esther Iffinwa

Phone: 020 3049 5993 


Website: None

Wandsworth Sickle Cell and Thalassaemia Support Group

Location: Wandsworth

Address: The Office, 15 Broadwater Road, Tooting SW17 0DS 

Contact: Jennifer, Osei 

Phone:  07448240892



The South

Essex Sickle Cell Support Group

Location: Essex

Address: 54, Trindehay, Basildon SS15, 5DN

Contact: Ms Vivian Osho

Phone: +44 7576881605


Website: None

Guy’s and St Thomas’ NHS Foundation Trust

Location: Southwark

Address: Guy’s Hospital, Great Maze Pond, London, SE1 9RT (Haematology dept, 4th Floor, Southwark wing, Haematology seminar room)

Contact: Mina Abedian

Phone: 020 7188 2718 / 020 7188 7188


Additional Information: Every Tuesday 6pm-7:30pm (except last Tuesday of the month when it is 1pm-2pm). This group is only open to GSTT patients

Sickle Cell and Thalassaemia Services 

Location: Luton

Address: The Poynt, 2-4 Poynters Road, Luton. LU4 0LA

Contact: Maureen Scarlett

Phone: 0333 405 0070


Website: None

Sickle Cell Suffolk

Location: Ipswich

Address: c/o 17 Malvern Close, Ipswich, IP3 9BH

Contact: Elaine Tappin / Annetta Bradshaw

Phone:07845 925756 / 07971 103862




Cardiff Sickle Cell and Thalassaemia Centre

Location: Cardiff

Address: Butetown Health Centre, @ Loudoun, Plas Iona, Butetown, Cardiff CF10 5HW

Contact: Annette Blackmore

Phone: 029 2047 1055

Mobile: 079 7687 5729



Additional Information: Open: Monday – Friday 09.00 – 17.00 Hours


Other Services

For local services download a list here.

Oscar Birmingham: Organisation for Sickle Cell Anaemia Relief and Thalassaemia Support

Location: Birmingham

Address: Side Entrance, 22 Regent Place, City Centre, Birmingham
B1 3NJ

Contact: Hobby Rahman

Phone: 0121 212 9209