Nutrition in Sickle Cell Research Project a Anglia Ruskin University research project. Please note that this research is not being conducted by the Sickle Cell Society
Title: Social-ecological factors influencing the unique nutrition needs of sickle cell patients impacting their health and wellbeing outcomes: exploring service user and stakeholder perceptions.
Principal Investigator: Claudine Matthews
- Group 1 – Sickle cell service users
- Group 2 – Sickle cell stakeholders (Health and Social Care Professionals)
- Are you an adult with sickle cell disease?
- Do you live in the Hackney area?
- Do you have sickle cell and have or look after children or adolescents with sickle cell disease?
Have you ever experienced any of the following symptoms?
- Poor appetite
- Weight loss
- Low weight
- Frequent infections
- Poor recovery from surgery or illness
Are you able to commit to attending a?
- 90-minute Focus Group
- 90-minute follow -up partnership meeting with stakeholders to co-produce a nutrition education tool and evaluate the tool using a questionnaire
- 60-minute research feedback meeting
- 90-minute focus group to discuss the unique nutrition needs of sickle cell patients and how the social factors affect it
- Scheduled – 4th April 2020 from 11.30 – 1pm
- 90- minute follow -up partnership meeting to co-produce the nutrition education tool and evaluate it
- Scheduled – 9th July 2020 from 11.30 – 1pm
- 60 – minute meeting about the final findings of the research
- Scheduled – 8th October from 11.30 – 12.30pm
How to get involved:
If you have answered yes to the questions above and want to take part in the study please email – firstname.lastname@example.org for more information.
Refreshments will be served at all the meetings– Thank You!
Ethics Approval: ESC-SREP-18-334 -Anglia Ruskin University
Closing date for recruitment is 30/03/2020