Thanksgiving Church Service
The Sickle Cell Society’s annual Thanksgiving Service will be held on 26th June at 3pm... Read More
100 kilometres for charity!
Where better to go on your Bank Holiday weekend than to the seaside? Brighton is one... Read More
Donate to the BBC Radio 4 appeal
Did you listen to today’s BBC Radio 4 Charity Appeal? Welcome to the Sickle Cell... Read More
Celebrate World Sickle Cell Day with the SCS
Sunday 19th June 2016, LALGRA Community Hall, Pimlico, 4pm-7pm. World Sickle Cell Day is on... Read More
Book your place at the SCS AGM
This year’s Sickle Cell Society AGM will take place on Saturday July 23rd at the... Read More
Save the dates: World Sickle Cell Day and Sickle Cell Society AGM
The Sickle Cell Society is excited to announce two dates to put in your diary... Read More
Malorie Blackman records charity appeal for sickle cell disorder
Award-winning author Malorie Blackman, OBE has joined forces with the Sickle Cell Society to raise... Read More
Forget Batman v Superman… be a superhero for sickle cell
Batman vs Superman might have got a lukewarm reception, and we think you could do so... Read More
Cycle from London to Paris
If you’re a keen cyclist looking for a challenge, we’ve got something special for you!... Read More
Travel costs for Specialist Sickle Cell Treatment
Some sickle cell patients face frequent travel for treatment. We are aware, for example, that... Read More
Celebrating Alia Graham’s life
Sheree Hall writes: Alia Graham sadly passed away on the 18th December 2015 from Sickle... Read More
Merry Christmas from all at the Sickle Cell Society
Merry Christmas and a Happy New Year from all at the Sickle Cell Society! We’ve... Read More
Get active in the New Year
Thinking of running in the New Year? We know what a good motivator it is... Read More
Guest blog: Direct Payments changed my life
After many years of being a DJ, Courtney is now working on disability rights, advocacy,... Read More
Left your Christmas cards a little bit late?
International posting deadlines have long passed to get your Christmas cards to arrive on time.... Read More
Take advantage of Brent’s community sickle cell service
Brent’s first ever community sickle cell service is up and running for local people with... Read More
Fundraise for the Children’s Holiday 2016
Children with sickle cell disease need extra support and care due to the complex nature... Read More
I.W.Y.S: Community Music and Radio Project
IWYS (It’s What You Say) is a community music and radio project founded by Creative... Read More
The Sickle Cell Society website survey
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SCS Offices closed on Thursday 3rd November
On Thursday 3rd November, Sickle Cell Society offices in Brent and Lambeth will be closed.... Read More
Am Giving Back: A charity ball
Am Giving Back are holding a charity ball in aid of The Sickle Cell Society... Read More
October Fundraiser spotlight
This month, there’s a lot of fundraising activity going on, and we are so excited... Read More
What do you think about gene editing technologies?
New genome-editing technologies, such as CRISPR, allow scientists to make very precise, permanent changes to... Read More
Sickle Cell: the history, legacy and achievements
A look back at our Black History Month event in Southwark. This event took place on... Read More
The 2015 Children’s Holiday: another spectacular year!
Donate to the 2016 Children’s Holiday By Comfort Ndive Another spectacular year for the annual... Read More
Hydroxyurea treatment is transforming the lives of children with sickle cell disease in the Liverpool area.
This is a guest article from Dr Russell Keenan, Consultant Paediatric Haematologist and Lead for... Read More
September fundraiser spotlight: sharks and bikes!
Simon completed a charity cycle race on 6th September, and raised £75 for the Sickle... Read More
Black History Month: The Sickle Cell Story. Friday 2nd October, London
How much do you know about sickle cell? Do you know it is the most... Read More
Pain meds and sickle cell: sickle cell patients are not addicts!
There’s a dangerous myth that people living with sickle cell are drug seekers and only... Read More
Testing a new treatment for sickle cell
Find out about a clinical research study for sickle cell disease in 2-17 year olds.... Read More
See how Cultural Fusion members celebrated World Sickle Cell Day
This is a guest post from Sharon Salmon, Deputy Chair of Network Rail’s Cultural Fusion... Read More
London Africa Cultural Event 2015
This year, we’re excited to announce that the London Africa Cultural Event will be raising... Read More
The Children’s Holiday 2015
Each year, we take children living with sickle cell on a specially-tailored holiday where they... Read More
Dr Neville Clare – Pioneer Sickle Cell Advocate Passes Away
The Sickle Cell Society was saddened to hear of the passing of Dr Neville Clare... Read More
SCD Clinical Trial – Click to see if you are eligible!
A clinical research study is currently evaluating a new treatment for children and teens with... Read More
Cycle for sickle!
Have you ever found yourself watching the Tour de France and thinking to yourself that... Read More
Proceedings from the 36th AGM and education day
The 36th AGM and Education Day took place on 18th July at the Grand Connaught... Read More
A Beautiful Cell and the Love of a Parent
By Emmanuel Amuta, age 9 Oh sickle cell, sickle cell shaped like the moon, the... Read More
Heated swimming sessions for kids with sickle cell
Shantel Brand wishes her 5 year old son could take part in swimming activities with... Read More
IMPORTANT INFORMATION ABOUT THE AGM
As you may know, our AGM is fully booked, and we’ve had to instigate a... Read More
Download the AGM documents
2017 Financial Accounts Minutes of 37th AGM Agenda – 38th AGM Don’t forget that online... Read More
A letter to Universal Studios regarding Ted 2
The following is the text of a letter sent to Larry Kurzweil, president of Universal... Read More
World Sickle Cell Day in Wembley–as it happened
Our 2015 World Sickle Cell Day event took place in Brent Civic Centre on 19th... Read More
Meet Sanah
Name: Sanah Shaikh Age: 25 Job: Social Media Marketing Manager, and Entreprenuer How often do... Read More
Cyclists! We need you!
The doitforcharity.com London to Brighton Cycle Ride is a fundraising challenge starting in London and... Read More
Upcoming event: World Sickle Cell Day in Brent
World Sickle Cell Day is coming up fast, and we want you to join us... Read More
Thank you to our superheroes!
On May 17th 2015, Doug Smith, Errol Maginley, James Wood, Donna Williams, Sheran Smith, Michelle... Read More
Upcoming event: World Sickle Cell Day Thanksgiving Service
Our annual church service of Thanksgiving and Remembrance will be taking place at St Marks Church... Read More
Upcoming event: Sickle Cell Society AGM, London, 18th July
The Sickle Cell Society’s Annual General Meeting will be held on Saturday 18th July at Grand Connaught... Read More
The annual SCS awards
History, Criteria & Categories: The Society traditionally recognises exemplary excellence, dedication, commitment and achievements that... Read More
Self managing sickle cell: a SCS patient education day
Dr Colette Reid’s slides: Understanding your pain medicines
Are you a superhero?
The Sickle Cell Society have 10 places for the Superhero Run taking place on Sunday... Read More
Run 10K and help people with sickle cell
The Sickle Cell Society have 12 charity places for the Vitality 2015 British 10K London... Read More
Patient Education Day, Bristol, 18th April
The Sickle Cell Society is excited to announce our latest Patient Education Day. This is... Read More
Fancy a challenge?
If you’re looking for a challenge, maybe this is for you. Cycle from London to... Read More
Monday 2nd March: North West London Sickle Cell Support Groups Consortium
In collaboration with North West London Haemoglobinopathy Clinical Network As requested by patients at the... Read More
Action request: Is your child’s school using best practice for sickle cell?
Professor Simon Dyson has authored a guide so that teachers will be better able to... Read More
Supporting Young People with Sickle Cell at School: A Guide
Sickle Cell and Thalassaemia: A guide to school policy [pdf] A new law (Section 100 of... Read More
Give blood this Christmas
This Christmas, it’s really important that blood stocks are high and blood is needed from... Read More
Turn their sickles into smiles!
Each year, we take children with sickle cell on holiday. The Sickle Cell Society provides a one... Read More
#GivingTuesday: Can you help us?
Tuesday 2nd December is #GivingTuesday, the global movement to promote an international day of giving.... Read More
Sickle Cell Society Annual Children’s Holiday 2014
Announcement! We’re currently fundraising so we can have a children’s holiday in 2015. Please click here... Read More
What makes a new medicine valuable to you – a survey
The project explores how people affected by genetic or rare conditions, such as sickle cell... Read More