Resources

Resources

From booklets for kids to information for adults, schools and health care professionals we have a whole range of resources for you to use. Plus, research, reports, all of our newsletters and other useful materials.

Winter Newsletter 2018

2017 has been a positive year. Despite austerity, uncertainty and lots of challe...

Order Sickle Cell Society pin badges, place cards and wristbands!

John James shows off his Sickle Cell Society pin, as the mayors of Southwark and...

2017 Children’s Holiday Information Book

This information booklet is for parents and carers of children attending our 201...

SCS Newsletter Summer 2017

Our summer newsletter is here, and we have all the exciting stories. Read all ab...

ASH Pocket Guides for healthcare professionals

The American Society of Hematology has produced three “pocket guides” on sic...

SCS Newsletter Winter 2016

The Sickle Cell Society’s Winter 2016 newsletter is now available! Read all ab...

Piloting a new Patient Reported Experience Measure for Sickle Cell Disease: A report of the findings

A national survey of over 600 adult and child sickle cell patients, and parents ...

Sickle Cell Disorder and Sickle Cell Trait

Sickle Cell Disorder And Sickle Cell Trait is a short leaflet explaining key poi...

Pain management guidelines for sickle cell

The Sickle Cell Society helped develop these most recent guidelines for manageme...

Standards for the Clinical Care of Adults with Sickle Cell Disease in the UK

These standards originate from, and represent, the needs of SCD service users in...

SCS Newsletter Winter 2015

Our Winter 2015 newsletter is now available! From a report on our Children’s H...

Sickle Cell: The History, Legacy and Achievements

Highlights from the Sickle Cell Society’s Black History Month event in 2015. T...

Travel insurance for sickle cell

This list is collated from experiences of people with sickle cell, who have foun...

Sickle Cell Society and Information Standard

The Sickle Cell Society achieved the Information Standard in 2011. The Informa...

Did You Know Age 5-10: an information booklet for children

Did You Know Age 5-10 is a booklet for children aged 5-10 explaining sickle cel...

Did You Know Age 11-16: an information booklet for young people

Did You Know Age 11-16 is a booklet for young people aged 11-16 explaining sic...

The Sickle Cell Trait Toolkit

We get lots of questions about sickle cell trait. From risks relating to sport,...

Let’s Talk About Sickle Cell: sickle cell awareness poster

Let’s Talk About Sickle Cell is a brand new resource prepared by the Sickle Ce...

The Family Legacy

This short drama explores the issues surrounding inheritance of sickle cell and ...

Inheritance of Sickle Cell Anaemia

Introduction Everyone has two copies of the haemoglobin gene in every cell in th...

SCS Newsletter- Summer 2015

The Summer 2015 Newsletter is here! Click here to download [pdf] To receive Sic...

Employees with Sickle Cell Disease- Information for Employers

Sickle Cell Disease /Disorder Sickle cell disease is a collective term given to ...

Supporting Young People with Sickle Cell at School: A Guide

Sickle Cell and Thalassaemia: A guide to school policy [pdf] A new law (Section...

World Sickle Cell Day – Arise News

We take a look at the blood disorder and meet a man who has learnt to live with ...

Fixers Sickle Cell Story on ITV News Granada Reports, March 2014

Fixer Sanah Shaikh (24) from Old Trafford, was diagnosed with sickle cell diseas...

What is Sickle Cell Anaemia?

This page will give you a brief guide to Sickle Cell Disorders and provide links...

Living with Sickle Cell

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

Day to Day care to people with SCD

A Guide for Parents, Guardians, Families and others giving Day to Day care to pe...

Information for Health Professionals

This page is intended to give you the information you need to recognise sickle c...

Why is Blood from Afro-Caribbean Donors Special?

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

Cognitive Behavioural Therapy (CBT) for Sickle Cell Patients – Focus Groups Report

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

Sexual Experiences in Men with Sickle Cell Disease – a Phenomenological Enquiry

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

A Psychological Approach to Managing Sickle Cell Disease and Pain

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

New Treatment Strategies For Sickle Cell Disease

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

Cognitive Therapy for the Management of Sickle Cell Disease Pain

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

The lack of key neuropsychology service

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

Sickle cell anemia and S-thalassemia in Sicilian children

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

European Haemoglobinopathy Registry

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

Licenced and Unlicenced Medicines (UK only)

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

Hydroxyurea in children with sickle cell

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

Massage Therapy in the Treatment and Management of Sickle Cell Anaemia

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

The Combined Contraceptive Pill

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

Sickle Cell Around the World

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

The Politics of Sickle Cell and Thalassaemia

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

Travel Tips

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

Testing Your Baby for Sickle Cell During Pregnancy

Introduction It is possible to test for the genes your baby has inherited. There...

Pain Management & Sickle Cell Sufferers

This is a report on external research. It is not endorsed by the Sickle Cell Soc...

Living with Sickle Pain Report

This is a report on external research. It is not endorsed by the Sickle Cell Soc...