What are you doing for World Sickle Cell Day?
World Sickle Cell Day 2019 The 19th June is World Sickle Cell Day and this... Read More
Tell your story
Tell Your Story: Joint oral history project on sickle cell with UCL and the Wellcome... Read More
2018 Winner: GSK IMPACT Awards
The Sickle Cell Society has won a national award for excellence! We have beaten more... Read More
Antenatal Screening Conference
YOU ARE INVITED! Parents’ Stories and Service Evaluation in sickle cell and thalassaemia screening – a... Read More
Fundraising Event: Frenemy
Our dedicated fundraiser, Lucreta, will be at the Catford performances raising money for the Society, so... Read More
It’s Valentine’s Day! Do You know Your Type?
It’s Valentine’s! Do You know Your Type? Valentine’s Day is upon us! Did you know... Read More
Dr Adebayo Olujohungbe Award
The Dr. Adebayo Olujohungbe Award Do you know a health professional (e.g. occupational therapist, psychologist, nurse, doctor,... Read More
Notting Hill Carnival Splash
Notting Hill Carnival Splash by Carmen Drioch “It was my idea to organise and raise... Read More
Top Tips for Young Men
To get involved with the mentoring programme email: mentors@sicklecellsociety.org
AliyasthoughtsSCD: Like a prisoner in your own body
Sickle cell can sometimes make you feel like a prisoner in your own body. Often... Read More
Terrific Teens
The Sickle Cell Society recently collaborated with Patient Voices and recruited participants to a residential... Read More
All Personal Independent Claims to be Reviewed
In March 2017 the government changed the PIP rules to make it harder for people... Read More
#LivingMyBestSickleLife – Don’t panic! Plan.
(You can listen to the audio version of this blog here) Recorded by Relax Like... Read More
BDB & Vivian Oparaku meets St Marys Adolescent Sickle Support Group.
In a bid to help Vivian (one of our service users and now volunteer) develop... Read More
Live Your Best Life
Hello again! I hope you are all doing well and enjoyed the recent holiday season... Read More
BDB meets Tropical Sun Foods and Mavis Amankwah
On Thursday 2nd November 2017, I was asked to present the Breaking Down Barriers (BDB) Project... Read More
£100,000 for new National Lottery funded research led by disabled people living with sickle cell disorder
De Montfort University (DMU) in Leicester has been awarded nearly £100,000 as part of a... Read More
BDB Meets Action West London
New year, new you? – Why not? The new year is the time to set... Read More
NHS England Webinars
NHS England is responsible for planning and buying specialised services for people living with sickle... Read More
BDB meets The Benefits Training Co.
On the 29th November 2017 BDB met The Benefits Training Co. for a training on Universal... Read More
NHS Sickle Cell and Thalassaemia (SCT) Screening Programme
The NHS Sickle Cell and Thalassaemia (SCT) Screening Programme screens pregnant women to find out if they... Read More
Blood Donation Rules Have Changed
On 28th November the rules for blood donation in England changed. The government announced the... Read More
BDB meets Help Your Health
This week I attended Help Your Health ❤ ‘Health Champion’ hosted by the lovely Clare Fay from Ealing... Read More
No More Meat? Stepping into Plant Based Living
Hey lovely people! I’ve been wanting to blog for a long while now, but for... Read More
Events | Fundraising | News
Medicine and Me Patient Education Day (Videos)
In September we joined with the Royal Society of Medicine to run a patient education... Read More
AliyasthoughtsSCD: Get Informed; Get Empowered
Having sickle cell made me have to grow up very quickly, As a child and... Read More
The Dr Adebayo Olujohungbe Award
The Dr. Adebayo Olujohungbe Award Do you know a health professional (e.g. occupational therapist, psychologist, nurse, doctor,... Read More
AliyasthoughtsSCD: Taking Back Control
Sickle cell doesn’t always effect people in the same way and when I hear others... Read More
Children’s Activities: November
Up coming activities: Sat 11th Nov – Planetarium (SE10) Sat 18th Nov – London Eye... Read More
Refer a Young Person for Mentoring
To refer a young person email: mentors@sicklecellsociety.org Or call: 07377170152
Free Mentoring
To book your first session email: mentors@sicklecellsociety.org Or call: 07377170152
Breaking Down Barriers
The Sickle Cell Society has partnered with the Breaking Down Barriers funded by the Sylvia... Read More
A Tribute to Emmanuel Christian Amuta
Tribute to Emmanuel Christian Amuta (29 August 2003 – 19 September 2017) (By Iyamide Thomas... Read More
AliyasthoughtsSCD
Hey Guys, My name is Aliya I’m a beautician, brand ambassador and I also suffer... Read More
Participate in the University of Sheffield Research
My name is Ore-Ofe Oladiran and I am a PhD student at the University of... Read More
Meet the Mentors: Whitney Joseph
Whitney was diagnosed with Sickle Cell at six weeks old. Since then she has managed... Read More
Children’s Activities: October
Upcoming events: Saturday 14th October – Ripley’s Believe it or Not Saturday 21st October –... Read More
Meet the Mentors: June Okochi – Lead Mentor
June was diagnosed with sickle cell before the age of 1 with the SS genotype.... Read More
#LivingMyBestSickleLife
Kedu! Eti Sen? Hallo! Hey! I am a 20-something-year-old recent Law graduate, scaling the City... Read More
SCSLL: Education and Employment Workshops
We’ve got some FREE Sickle Cell Employment & Education workshops coming up in London this... Read More
Mentoring Scheme for Hackney and City
We are running a new mentoring scheme for 10 to 24 year olds in Hackney and... Read More
Medicine and Me: Living with sickle cell disorder
The Royal Society of Medicine and the Sickle Cell Society UK would like to invite... Read More
NICE Clinical Guidelines: Sickle Cell
Are you happy with the treatment you receive when admitted to hospital? The Sickle Cell... Read More
NHS England Haemoglobinopathies
NHS England is responsible for commissioning specialised services for people living with sickle cell disease... Read More
“At Last”: Jojo Philips sings at the Annual Service of Thanksgiving
Singer Jojo Philips sang “At Last” at the Sickle Cell Society 2017 Annual Service of... Read More
What does the new Fundraising Preference Service mean for you?
This week saw the launch of the new Fundraising Preference Service, a new service which protects you... Read More
My Invisible Life: Bye, London
Hey everyone So up until recently I’ve been really excited and pleased to be living... Read More
Register for the AGM!
The Sickle Cell Society’s Annual General Meeting takes place on Saturday July 22nd at Holborn... Read More
Nominations are open for the SSC awards!
The Society recognises excellence within the sickle cell community, and two awards are available. To... Read More
Recycle for Sickle Cell!
WE WANT YOUR STUFF!! Did you have a Spring clean this year? If not, now... Read More
Greater Heights: A WSCD Fundraising ball
Discounted tickets are available to people living with sickle cell and are currently unemployed. You... Read More
Watch: Hope for Sickle Cell
Tinu lives with sickle cell disorder. She and her doctor, Dr Paul Telfer talk about... Read More
May Children’s Activities
Upcoming events: Sat 13th May: Climbing (E3) Sat 20th May: Kidzania (W12) Sat 20th May:... Read More
Look after your health and stick with your treatment
Attending your doctors’ appointments and making sure you adhere to your treatment keeps you healthy.... Read More
Prescription charges set to rise again
Prescription charges are once again rising this April, to £8.60 an item. People living with... Read More
Sign up for the Virgin British 10K Run
Calling all runners! The Virgin British 10K Run takes place in London on 9th July.... Read More
South London Children’s Activities this April
Our Sickle Cell South London Link service is offering a range of free activities for... Read More
Fancy a luxurious stay in a London hotel?
How do you fancy a luxurious stay at one of London’s lushest hotels? We’re auctioning... Read More
March and April Children’s Activities
We’re excited to announce that more free activities for children have been planned! These activities... Read More
Apply for the Children’s Holiday
Our 2017 Children’s Holiday will be taking place in August. If you’d like your child... Read More
Dr Adebayo Olujohungbe Award for Excellence in Sickle Cell Adult Care
The Sickle Cell Society recognises the importance of multidisciplinary teams in treating and caring for... Read More
Diary Of A Sickler: Happy Belated New Year
Chantelle is a 23 year old woman who lives with sickle cell in Bradford and... Read More
Sickle Cell Society Holiday Period Office Closure
During the festive period, the Sickle Cell Society will be closed on the following dates: Monday 26th... Read More
Tribute to Comfort Ndive
(By Iyamide Thomas, NHS Engagement Lead, Sickle Cell Society) ‘L-R: Iyamide and Comfort at the... Read More
My Invisible Life- Living With Sickle Cell: Hello World, from my Hospital Bed
Chantelle is a 23 year old woman who lives with sickle cell in Bradford and... Read More
It’s getting cold… how can you stay warm?
Winter can be a tough time if you live with sickle cell. Being cold can... Read More
A SPOOKTACULAR Halloween bowling adventure
The Sickle Cell Society’s new Children’s Activities Programme, funded by Children In Need, took children... Read More
Rest in peace, Comfort Ndive
We are sad to inform you that Comfort Ndive has passed away on 27 October... Read More
Give a little extra to the Society… for free!
Donating through Gift Aid means charities can claim an extra 25p for every £1 you... Read More
Watch: 12 year old Emmanuel recites his poem about sickle cell
12 year old Emmanuel recites his inspiring poem about living with sickle cellat the Sickle Cell... Read More
Support our Vitality 10K runners
This Sunday, we have lots of runners undertaking the Vitality British 10K Run in London. They’ll be... Read More
Find a World Sickle Cell Day celebration near you!
London Sickle Cell Society’s World Sickle Cell Day celebration. LALGRA Community Hall, Vauxhall Bridge Road.... Read More
