Virtual Children’s Holiday 2022
This year we’re excited to be running our popular online “Virtual” Holiday again for kids... Read More
World Sickle Cell Day 2022
Sunday 19th June is World Sickle Cell Day, a United Nation’s recognised day to raise... Read More
Dr Kwaku ‘KOF’ Ohene- Frempong – our condolences
We are saddened to learn of the loss of Dr Kwaku ‘KOF’ Ohene- Frempong. We... Read More
New research reveals healthcare professionals are critical of health inequities in early diagnosis and treatment of sickle cell disorder
New research from Creation Healthcare reveals healthcare professionals are critical of health inequities and lack... Read More
New Chair of Trustees Announced
The Sickle Cell Society is excited to announce a new Chair of Trustees, Michele Salter.... Read More
Stem Cell Transplant: My New Journey
Join us on Monday 28th March at 6:30pm for ‘Stem Cell Transplant: My New Journey’... Read More
Establishing a Cure – Logo Design Competition
*NOW CLOSED* Establishing a Cure – Logo Design Competition We are excited to announce an... Read More
Mrs Herma Falconer 1933-2022
We are sad to announce that Mrs Herma Falconer, who was part of the Sickle... Read More
My Baby Has Sickle Cell: Online Event
Join us on Wednesday 23rd March at 6:30pm for our online event “My Baby Has... Read More
Give Blood: A Chat with Heroes
Do you want to help save lives but still feel undecided about giving blood? This... Read More
Family Wellbeing Workshop
Do you or anyone you live with have sickle cell? Join us for a Family... Read More
More Black African people can now give blood following major change to blood donation rules
The Sickle Cell Society has teamed up with NHSBT and three other charities to promote... Read More
Easter Arts & Crafts
Do you or anyone you live with have sickle cell? Join us for an Easter... Read More
Sickle Cell: What’s the Latest?
Join us on Thursday 10th March at 6:30pm for a live Q&A session with Clinical... Read More
Money Matters Workshop
Do you or anyone you live with have sickle cell? Join us for a Money Matters... Read More
Events | Fundraising | News
Run for Sickle Cell
Are you passionate about running? Have you ever participated in a marathon or half-marathon? Do... Read More
Songwriting Workshop
Do you or anyone you live with have sickle cell? Join us for a Songwriting... Read More
Exchange Transfusions Changed My Life
Exchange Transfusions Changed My Life A Give Blood Spread Love blog My name is Laurel... Read More
Sickle Cell Society calls for substantial improvements following CQC report into North Middlesex University Hospital Trust
Sickle Cell Society calls for substantial improvements following CQC report into North Middlesex University Hospital... Read More
Family Baking Workshop
Do you or anyone you live with have sickle cell? Join us for a fun... Read More
Crizanlizumab to be available from 1st February
New sickle cell treatment to become available from the 1st February 2022. Back in October... Read More
Health Inequalities – Spotlight on Sickle Cell
Join the conversation, sign up to be a life-saving blood donor and listen to our... Read More
Break the Stigma
Join us for another exciting expert-led online event Break the Stigma: Sickle Cell & Blood... Read More
‘No One’s Listening Report’ Explained
Join us and the Give Blood Spread Love project on Monday 17th January at 6:30pm... Read More
Sickle Cell and Fatigue (FiSCD Study)
The FiSCD Study: Understanding Fatigue in children and young people with Sickle Cell Disease The... Read More
Coronavirus (COVID-19) & Sickle Cell Disorder
Coronavirus (COVID-19) & Sickle Cell Disorder This page provides the latest information and guidance specifically... Read More
Mental Health at Christmas: Some Tips for Coping
Mental Health at Christmas A guest article by Rehab 4 Addiction Why people suffer from... Read More
Office Re-Opening
On Monday 29th November, we re-opened our office after the phase-one of our refurbishment. We... Read More
Painting Workshop
Do you or anyone you live with have sickle cell? Join us for a fun... Read More
Statement on Dr Mischa Brozovic
Statement on Dr Mischa Brozovic The Sickle Cell Society were deeply saddened to hear of... Read More
Lost in Time: A Crazy Christmas
A group of lovely young people with sickle cell have been working very hard over... Read More
Hallelujah Christmas Time (Christmas Single)
The B Positive Choir have released a fantastically festive Christmas single ‘Hallelujah Christmas Time’. B... Read More
Blood Donation: All You Need to Know
Do you have unanswered questions around giving blood? Join the Give Blood Spread Love team on... Read More
Guided Walk Fundraiser
Not Just Camden’s qualified guide, Des Aherne, will be leading a guided tour of Walthamstow... Read More
Westminster Hall Debate
Treatment of Sickle Cell We were delighted that Rt Hon Pat McFadden MP (Chair of... Read More
Christmas Shopping
Christmas Shopping This Christmas, why not raise FREE donations to support our work when you... Read More
First Major Crisis After Ten Years
So, this year has been an incredible year full of happiness, blessings and new ventures.... Read More
Have Your Voice Heard: Survey on Changes to Blood Donor Selection Rules
Have your voice heard: Take part in a survey on changes to blood donor selection... Read More
No One’s Listening – A Report
MPs call for urgent changes to sickle cell care after inquiry finds “serious failings” Report... Read More
Making a Drama out of Sickle Cell Disease (Voice Article)
Making a Drama out of Sickle Cell Disease (Voice Article) In late 2009, early 2021,... Read More
Chocolate Tasting for Charity (Online)
The Mayor of Waltham Forest, Cllr Elizabeth Baptiste, is pleased to invite you to an... Read More
Mid Term Strategy Update
In 2020 we issued a strategy describing how we would develop the Sickle Cell Society... Read More
Autumn Newsletter 2021
Autumn Newsletter 2021 In this Autumn edition of our newsletter, get an update on the... Read More
Statement on the Tragic Death of Sir David Amess
The APPG for Sickle Cell and Thalassaemia send our deepest condolences to the family of... Read More
First Sickle Cell Treatment in Over 20 Years
For the first time in over 20 years, a new treatment for sickle cell has... Read More
Festive Performance
Do you have or live with anyone that has sickle cell who is aged 8-15... Read More
African Singing and Movement
Do you or anyone you live with have sickle cell? Join us for some African... Read More
Nezwick Jive Charity Night
Join us for a fun evening of dance and fundraising to celebrate Black History Month!... Read More
In Memory of Olivier Mmounda
The Sickle Cell Society were deeply saddened to hear of the recent passing away of... Read More
Family Empowerment Workshop
Do you have or live with someone who has sickle cell? Join us for a... Read More
Our Voices Need to be Heard
When you’re in sickle cell crisis it takes the life out of you literally as... Read More
Join the Ascelus Service User Advisory Group
Ascelus Service User Advisory Group We are excited to be involved in the Ascelus research... Read More
AGM 2021 – Documents (Agenda, Minutes and Annual Accounts)
This page provides the documents that will be used at the Sickle Cell Society’s 42nd... Read More
Save Free Prescriptions (An Open Letter to the Secretary of State)
Sickle Cell Society signs a joint open letter to save free prescriptions for 60-65 year... Read More
Global Cure Sickle Cell Disease Virtual Conference
You are invited to attend a free Global Cure Sickle Cell Disease Virtual Conference on October... Read More
The Sickle Cell Society – ‘Emmanuel Amuta Poetry Award’
The Sickle Cell Society – ‘Emmanuel Amuta Poetry Award’ Are you a young person (between... Read More
Sickle Cell Society AGM 2021(Virtual)
About this event You are invited to the 42nd Annual General Meeting (AGM) of the... Read More
Future treatments for Sickle Cell Disease
Future Treatments for Sickle Cell On Thursday 2nd September 2021, the Sickle Cell Society and... Read More
Gideon’s Treasure London Fashion Week Charity Gala
Gideon’s Treasure London Fashion Week Charity Gala The Sickle Cell Society will be partnering with Gideon’s... Read More
How to Live with Sickle Cell: Sickle Cell and I
HOW TO LIVE WITH SICKE CELL: Sickle Cell and I The above is the title... Read More
Prescription Charge Petition
Add Sickle Cell to the Prescription Charge Exemption List Anusjka Regis-Etumnu has set up a... Read More
South London: We’re Listening
Affected by sickle cell in South London? We’re listening. In April 2021, Sickle Cell Society... Read More
Events | Fundraising | News
Run the London Marathon for Sickle Cell
Are you passionate about running? Have you ever participated in a marathon or half-marathon? Do... Read More
Afro-Caribbean Dance Workshop
Do you or anyone you live with have sickle cell. Join us for a Afro-Caribbean... Read More
Summer Themed Virtual Party
Do you or anyone you live with have sickle cell? Join us for a Summer... Read More
Monthly Parent Talk
Monthly Parent Talk Are you a parent with sickle cell or has a child with... Read More
Virtual Children’s Holiday
Every year for as long as we can remember we’ve run a multi-activity Children’s Holiday... Read More
Time to Listen – Time to be Heard
IT IS TIME TO LISTEN, IT IS TIME TO BE HEARD This must be one... Read More
FREE Online conference to focus on nutrition in Sickle Cell care
You may remember that back in March 2020 we shared a call for participants for... Read More
Inquiry into Sickle Cell Care: Evidence Sessions
Inquiry into Sickle Cell Care: Evidence Sessions In May we launched a call for evidence... Read More
Miffy Sickle Cell Partnership
Miffy to partner with the Sickle Cell Society Miffy – the classic bunny character created... Read More
Virtual Guided Walk
In April, Alan Hovel (Notjustcamden UK Guide) led a charity guided walk in aid of the... Read More
Family Quiz Night
Do you or someone you live with have sickle cell? Join us for a Family... Read More
Exhibition: History and Memory of Sickle Cell Anaemia in Britain 1950 – 2020
Exhibition Launched on the History of Sickle Cell Anaemia in the UK at Black Cultural... Read More
Inquiry into Sickle Cell Care: A Call for Evidence
The deadline for the call for evidence has now passed. To find out more about... Read More
Updated Statement on the Preventable Death of Evan Nathan Smith
Updated Statement on the preventable death of Evan Nathan Smith Last month, we published a... Read More
“You Must Be Feeling Better”
Stop policing our bodies! Having sickle cell means everything you do is weighed up, judged,... Read More
Bola’s Story
Life-saving sickle cell treatment is highlighted in a new video sharing patient story. Life-saving sickle... Read More
Family Comedy Show
Do you or anyone you live with have sickle cell? Join us for a Family... Read More
