2021 And We Still Cry: In memory of Evan Smith & Richard Okorogheye
2021 And We Still Cry: In memory of Evan Smith & Richard Okorogheye A Real Lives... Read More
SCS Statement on the Preventable Death of Evan Nathan Smith
Our thoughts are with the family of Evan Nathan Smith in light of the inquest... Read More
Protected: Our Favourite Brent
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Vaccines: Your Questions Answered (Daily Mirror Article)
Vaccines: Your Questions Answered (Daily Mirror Article) Our NHS engagement lead, Iyamide Thomas, joined with... Read More
Living on Autopilot: Sickle Cell and Depression
When I was severely depressed it was like living on autopilot. During my constant hospital... Read More
In Conversation with Professor Dame Elizabeth Anionwu
Talk on the Sickle Cell Society’s exhibition about the history of sickle cell disease in... Read More
Easter Workshops (3 Activities)
Easter Workshops Do you have sickle cell or live with anyone that has sickle cell?... Read More
UPDATE: LentiGlobin Clinical Trials Resumed
UPDATE: LentiGlobin Clinical Trials In September 2020 approval was granted to BluebirdBio to undertake trials... Read More
Open Letter Published by Sickle Cell Society and Charity Collaboration
The Sickle Cell Society joins charity collaboration to write open letter to encourage those with... Read More
‘Give Blood, Spread Love, England’ Receives Funding Boost
‘Give Blood, Spread Love, England’ receives funding boost to help tackle health inequalities and promote... Read More
Sickle Cell Society Joins Charity Collaboration to Boost Vaccine Drive
Sickle Cell Society Joins Charity Collaboration to Boost Vaccine Drive The Sickle Cell Society has... Read More
Rare Disease Day
Sickle Cell Society Joins Discussion with GBT about the Power of Rare Disease Day in... Read More
Dealing with Sickle Cell
🖤…#sicklecellawareness Dealing with sickle cell can be an extremely lonely and isolating experience. Sickle cell... Read More
Tell us Your Experience of how Newborn Screening Results for Sickle Cell and Thalassaemia were Communicated
Do you or someone you know have sickle cell or trait and have not yet... Read More
T-Shirt Workshop
T-Shirt Workshop A free event for ages 6-13 Do you or anyone you live with have... Read More
Managing Your Family’s Wellbeing
Managing Your Family’s Wellbeing Are you a parent with sickle cell or who has a... Read More
Digital Exhibition Launch
The Sickle Cell Society launch digital exhibition on the history of sickle cell in the... Read More
Launch of New Sickle Cell & Thalassaemia Publications
Launch of New Sickle Cell & Thalassaemia Publications The Sickle Cell Society as part of... Read More
Doreen Amongi – T-Shirt Partnership
Doreen Amongi is raising money to support sickle cell. Doreen is selling a range of... Read More
Filmmaking Masterclass
Filmmaking Masterclass We still have spaces left for our 15-18 Masterclass. Register today! Our Journey,... Read More
Cast Aside and Forgotten – A Report
Cast Aside and Forgotten – A Report The All-Party Parliamentary Group for Sickle Cell and... Read More
Online Shopping
Online Shopping Buying online? Why not raise FREE donations to support our work with every... Read More
Transition to Motherhood for Women with Sickle Cell Disease – Research Study
Transition to Motherhood for Women with Sickle Cell Disease – a research Study by Sovereign... Read More
Cooking Workshop
Cooking Workshop with Bruna Oliveira Do you or someone you live with have sickle cell?... Read More
Wrongly Accused
When you have sickle cell it becomes extremely easy for doctors and nurses to accuse... Read More
Sickle cell disorders in the UK (History, Sciences and Culture)
About this Event Imperial As One and the Sickle Cell Society are pleased to invite... Read More
Positive Wellbeing Workshop
Do you have or live with someone who has sickle cell? Join us for our: Positive... Read More
The Den of Giving – A Festive Performance
The Den of Giving – A Festive Performance Come and watch an exciting new performance... Read More
Online Content Survey
Help us improve our online content during the coronavirus pandemic with our Online Content Survey. The... Read More
New Sickle Cell Medicine Licensed in Europe
The European Commission has granted a new sickle cell drug authorisation for use in Europe... Read More
Rudimental Ft Sickle Plus “Higher” Charity Song
Acclaimed British band, Rudimental have produced a multi-cultural sickle cell disease awareness charity song. Sickle... Read More
Biography of an Influential Black Person – BHM Scavenger Hunt
All throughout October we have been celebrating Black History Month with a Scavenger Hunt. We... Read More
Black Women Employment and Sickle Cell Disorder – Research Study
Black Women Employment and Sickle Cell Disorder – a Reasearch Study by Myrle Blaine (Derby University)... Read More
Keep Fighting
When you go into sickle cell crisis it can mean a lot of trips to... Read More
Tell Your Story
Tell Your Story: Join us for this fun and creative workshop about the history of... Read More
Back to Work- Is there anyway you can take away my sickle cell?
So I have now been back at work for 5 weeks, it has been good... Read More
Black History Month Interactive Storytelling Workshop
Join us for our free interactive storytelling workshop for ages 6-17 years in celebration of... Read More
Blood Donors Save My Life
Mum of one of the youngest sickle cell patients to rely on donated blood makes... Read More
Black History Month Scavenger Hunt
Are you ready for a month of fun, creative, games and learning? Then sign up... Read More
Winners – Emmanuel Amuta Poetry Award
The Emmanuel Amuta Poetry Award is a creative competition for young people (between ages 10 -15... Read More
SCS letter to Boris Johnson on Public Health England Restructure
Letter to Boris Johnson urges the Prime Minister to not lose smaller charity partnerships in... Read More
AGM 2020 Documents
If you are signed up to attend our 41st Annual General Meeting then please see... Read More
Virtual Carnival Themed Workshop
Virtual Carnival Themed Workshop Join our virtual Carnival experience with a Music session, Dance session... Read More
Sickle Cell Society AGM 2020 (Virtual)
The Sickle Cell Society’s 41st Annual General Meeting (2020) About this Event The 41st Annual... Read More
COVID-19 and My Year of Growth
Nobody could have visualised what the year 2020 would be like. I for one was... Read More
Human First
When I was a child sickle cell didn’t really affect my life. I would rarely... Read More
Oral Sickle Cell Treatment Approved in Scotland
Oral Sickle Cell Treatment Approved in Scotland The Scottish Medicines Consortium (SMC) has made the... Read More
My Special Mother
This is a special blog for my mother and for all the mothers who are... Read More
World Sickle Cell Day Poster 2020
For World Sickle Cell Day 2020 we encouraged people to wear red to raise awareness... Read More
Sickle Cell, Blood Donation and Me
Join Sickle Cell Society for this interactive workshop on sickle cell disorders, blood donation and... Read More
Darien’s Real Lives Blog
To mark #SickleCellAwarenessMonth brave 9 year old Darien Russell-Jones who attends Central Middlesex Hospital at London... Read More
The Future
Sometimes you can’t help but think about you’re future or lack there of. As I’ve... Read More
SCS Chief Executive, John James OBE, appears in Leaders Council podcast alongside Lord Blunkett.
The Sickle Cell Society’s Chief Executive, John James OBE, appears in Leaders Council podcast alongside... Read More
Voices of Pain
Voices of Pain is a multi-track montage of individuals’ reports living with or affected by sickle cell.... Read More
Sickle Cell & Lockdown
Sickle Cell & Lockdown Well, where do I begin as so much has happened since... Read More
The Impact of Living with Sickle Cell Disease in the UK
The Impact of Living with Sickle Cell Disease in the UK The Sickle Cell World... Read More
Nutrition in Sickle Cell Disease
Nutrition in Sickle Cell Disease: a call to action to improve the health and wellbeing... Read More
Sickle Cell Disease and its West African Discovery
Sickle Cell Disease and its West African Discovery: a free webinar to raise awareness of... Read More
Sickle Cell Disorders and the Call for Black Blood Donors
Sickle Cell Disorders and the Call for Black Blood Donors Join us for an interactive... Read More
A ‘Local Hero’
June is ‘heritage Month’ in the London Borough of Newham and they have launched an... Read More
Calling All Sickle Cell Parent Carers and Health Professionals
Join one of our online events this July, showcasing the findings to date of the... Read More
Sickle Cell and COVID-19 Survey
The experiences of those living with sickle cell or caring for someone in the COVID-19... Read More
Everyday I Get Stronger
Everyday I Get Stronger Well here I am, 3 months exactly after my second hip... Read More
Global’s Make Some Noise raises over £40K for Sickle Cell Children’s Activities Programme
The Sickle Cell Society is excited to announce that Global’s Make Some Noise has raised £44,385 for... Read More
Sickle Cell at Home
Sickle Cell at Home A series of weekly challenges for you to get involved with,... Read More
Business As Usual – Office Closure & Working from Home
Business As Usual – Office Closure & Working from Home Over the last year, staff... Read More
Sick and Tired (of Being Sick and Tired)
When you have sickle cell you can become severely anaemic which makes daily simple tasks... Read More
The London Blood Mobile 2020
NHS Blood and Transplant are trailing a Blood Mobile in London to support their ongoing... Read More
Nutrition in Sickle Cell Research Project
Nutrition in Sickle Cell Research Project a Anglia Ruskin University research project. Please note that... Read More
Haemoglobinopathies Coordinating Centres (HCCs)
As you may remember as part of the Sickle Cell Service Review (Haemoglobinopathy Service Review)... Read More
Revised Hip Replacement Recovery
I was told that the second surgery went very well, by the surgeon who performed... Read More
My Reflection on Failed Hip Replacement Operation [Part 2]
Where did I end in my last blog reflection? I think I was just coming... Read More
Winnie Sings Big Band – Sickle Cell Fundraiser
Due to concerns over the coronavirus pandemic, this show has been rescheduled to take place... Read More
My Reflection on Failed Hip Replacement Operation [Part 1]
I firstly must say that I thank almighty God for my life, the struggles are... Read More
My Sickle and I (an event for men with sickle cell)
My Sickle and I (an event for men with sickle cell) The Sickle Cell Society... Read More
I Am Number 17
1 in 17 people in the UK will be affected by a rare disease*. The... Read More
Children’s Holiday 2020
Children’s Holiday 2020 The Sickle Cell Society is excited to announce that applications are now... Read More
Love is in the Air – Charity Abseiling Event
Love is in the Air – Charity Abseiling Event on Valentine’s Day Friday 14 February... Read More
