Exhibition: History and Memory of Sickle Cell Anaemia in Britain 1950 – 2020
Exhibition Launched on the History of Sickle Cell Anaemia in the UK at Black Cultural... Read More
Inquiry into Sickle Cell Care: A Call for Evidence
The deadline for the call for evidence has now passed. To find out more about... Read More
Updated Statement on the Preventable Death of Evan Nathan Smith
Updated Statement on the preventable death of Evan Nathan Smith Last month, we published a... Read More
Bola’s Story
Life-saving sickle cell treatment is highlighted in a new video sharing patient story. Life-saving sickle... Read More
Family Comedy Show
Do you or anyone you live with have sickle cell? Join us for a Family... Read More
SCS Statement on the Preventable Death of Evan Nathan Smith
Our thoughts are with the family of Evan Nathan Smith in light of the inquest... Read More
Protected: Our Favourite Brent
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Vaccines: Your Questions Answered (Daily Mirror Article)
Vaccines: Your Questions Answered (Daily Mirror Article) Our NHS engagement lead, Iyamide Thomas, joined with... Read More
In Conversation with Professor Dame Elizabeth Anionwu
Talk on the Sickle Cell Society’s exhibition about the history of sickle cell disease in... Read More
Easter Workshops (3 Activities)
Easter Workshops Do you have sickle cell or live with anyone that has sickle cell?... Read More
UPDATE: LentiGlobin Clinical Trials Resumed
UPDATE: LentiGlobin Clinical Trials In September 2020 approval was granted to BluebirdBio to undertake trials... Read More
Open Letter Published by Sickle Cell Society and Charity Collaboration
The Sickle Cell Society joins charity collaboration to write open letter to encourage those with... Read More
‘Give Blood, Spread Love, England’ Receives Funding Boost
‘Give Blood, Spread Love, England’ receives funding boost to help tackle health inequalities and promote... Read More
Sickle Cell Society Joins Charity Collaboration to Boost Vaccine Drive
Sickle Cell Society Joins Charity Collaboration to Boost Vaccine Drive The Sickle Cell Society has... Read More
Rare Disease Day
Sickle Cell Society Joins Discussion with GBT about the Power of Rare Disease Day in... Read More
Dealing with Sickle Cell
🖤…#sicklecellawareness Dealing with sickle cell can be an extremely lonely and isolating experience. Sickle cell... Read More
Tell us Your Experience of how Newborn Screening Results for Sickle Cell and Thalassaemia were Communicated
Do you or someone you know have sickle cell or trait and have not yet... Read More
Keep Warm in the Cold Weather
Winter can be a tough time if you live with sickle cell. Being cold can... Read More
Digital Exhibition Launch
The Sickle Cell Society launch digital exhibition on the history of sickle cell in the... Read More
Launch of New Sickle Cell & Thalassaemia Publications
Launch of New Sickle Cell & Thalassaemia Publications The Sickle Cell Society as part of... Read More
Cast Aside and Forgotten – A Report
Cast Aside and Forgotten – A Report The All-Party Parliamentary Group for Sickle Cell and... Read More
Online Shopping
Online Shopping Buying online? Why not raise FREE donations to support our work with every... Read More
Transition to Motherhood for Women with Sickle Cell Disease – Research Study
Transition to Motherhood for Women with Sickle Cell Disease – a research Study by Sovereign... Read More
The Den of Giving – A Festive Performance
The Den of Giving – A Festive Performance Come and watch an exciting new performance... Read More
Online Content Survey
Help us improve our online content during the coronavirus pandemic with our Online Content Survey. The... Read More
New Sickle Cell Medicine Licensed in Europe
The European Commission has granted a new sickle cell drug authorisation for use in Europe... Read More
Black Women Employment and Sickle Cell Disorder – Research Study
Black Women Employment and Sickle Cell Disorder – a Reasearch Study by Myrle Blaine (Derby University)... Read More
Blood Donors Save My Life
Mum of one of the youngest sickle cell patients to rely on donated blood makes... Read More
Winners – Emmanuel Amuta Poetry Award
The Emmanuel Amuta Poetry Award is a creative competition for young people (between ages 10 -15... Read More
SCS letter to Boris Johnson on Public Health England Restructure
Letter to Boris Johnson urges the Prime Minister to not lose smaller charity partnerships in... Read More
Sickle Cell Society AGM 2020 (Virtual)
The Sickle Cell Society’s 41st Annual General Meeting (2020) About this Event The 41st Annual... Read More
Oral Sickle Cell Treatment Approved in Scotland
Oral Sickle Cell Treatment Approved in Scotland The Scottish Medicines Consortium (SMC) has made the... Read More
World Sickle Cell Day Poster 2020
For World Sickle Cell Day 2020 we encouraged people to wear red to raise awareness... Read More
Sickle Cell, Blood Donation and Me
Join Sickle Cell Society for this interactive workshop on sickle cell disorders, blood donation and... Read More
SCS Chief Executive, John James OBE, appears in Leaders Council podcast alongside Lord Blunkett.
The Sickle Cell Society’s Chief Executive, John James OBE, appears in Leaders Council podcast alongside... Read More
Voices of Pain
Voices of Pain is a multi-track montage of individuals’ reports living with or affected by sickle cell.... Read More
The Impact of Living with Sickle Cell Disease in the UK
The Impact of Living with Sickle Cell Disease in the UK The Sickle Cell World... Read More
Nutrition in Sickle Cell Disease
Nutrition in Sickle Cell Disease: a call to action to improve the health and wellbeing... Read More
Sickle Cell Disease and its West African Discovery
Sickle Cell Disease and its West African Discovery: a free webinar to raise awareness of... Read More
A ‘Local Hero’
June is ‘heritage Month’ in the London Borough of Newham and they have launched an... Read More
Calling All Sickle Cell Parent Carers and Health Professionals
Join one of our online events this July, showcasing the findings to date of the... Read More
Sickle Cell and COVID-19 Survey
The experiences of those living with sickle cell or caring for someone in the COVID-19... Read More
Global’s Make Some Noise raises over £40K for Sickle Cell Children’s Activities Programme
The Sickle Cell Society is excited to announce that Global’s Make Some Noise has raised £44,385 for... Read More
Sickle Cell at Home
Sickle Cell at Home A series of weekly challenges for you to get involved with,... Read More
Business As Usual – Office Closure & Working from Home
Business As Usual – Office Closure & Working from Home Over the last year, staff... Read More
Nutrition in Sickle Cell Research Project
Nutrition in Sickle Cell Research Project a Anglia Ruskin University research project. Please note that... Read More
Haemoglobinopathies Coordinating Centres (HCCs)
As you may remember as part of the Sickle Cell Service Review (Haemoglobinopathy Service Review)... Read More
My Sickle and I (an event for men with sickle cell)
My Sickle and I (an event for men with sickle cell) The Sickle Cell Society... Read More
I Am Number 17
1 in 17 people in the UK will be affected by a rare disease*. The... Read More
Children’s Holiday 2020
Children’s Holiday 2020 The Sickle Cell Society is excited to announce that applications are now... Read More
Love is in the Air – Charity Abseiling Event
Love is in the Air – Charity Abseiling Event on Valentine’s Day Friday 14 February... Read More
New Year’s Honours given to SCS Patrons and Medical Adviser
A massive congratulations to our patrons who received honours from the Queen on New Year’s... Read More
The ‘Help Us Help You’ Campaign Returns
‘Help Us Help You’ campaign returns to support the public over the winter months This... Read More
Global Survey Uncovers Under-Reported Effects of Sickle Cell (SWAY Results)
Findings from more than 2,000 respondents in 16 countries underscore the debilitating and under-reported effects... Read More
Sickle Cell: A Man’s Perspective
A Man’s Perspective: A night of insightful, educational and enlightening discussions about issues surrounding sickle... Read More
SOS 40 Day Challenge
ARE YOU TAKING PART IN THE SELF OVER SICKLE 40 DAY CHALLENGE? In celebration of... Read More
Dame Elizabeth wins Pride of Britain Award
Sickle Cell Society patron wins Pride of Britain Award One of the Sickle Cell Society’s... Read More
Exhibition: The Colour of Pain
Imperial College London’s Centre for Languages, Culture and Communication present a multi-media exhibition with works... Read More
Mayor of Brent Donates Blood
40,000 black blood donors needed to help save lives The Mayor of Brent, Councillor Ernest... Read More
South London Link
In 2016 the Sickle Cell Society received funding from the Big Lottery fund to launch... Read More
Molade – Sickle Cell Partnership
The Sickle Cell Society is excited to be partnering with Molade. Molade, short for Omolade... Read More
Is Your Baby a Carrier of Sickle Cell? We Need You!
The Sickle Cell Society is on the Steering Committee of a research study being conducted... Read More
Blood Donation and Sickle Cell [BBC Radio 4]
Lindsay Johns asks why so few black Britons give blood and examines why it matters.... Read More
Sickle cell anaemia patients denied benefits due to ‘invisible’ illness, MPs warn [Sky News]
Thousands of people with the genetic blood disorder sickle cell anaemia are being declined vital... Read More
Hackney and City Mentoring Programme
As most of you will know, the Sickle Cell Peer Mentoring Programme has been successful... Read More
End the Blood Tax – A Report
Sickle Cell Society releases new report into the impact of prescription charges for those living... Read More
Parent Consultation Workshop
Invitation to attend a forthcoming consultation workshop Can you attend a workshop? The Sickle Cell... Read More
40 Portraits of Pain
40 Portraits of Pain By June Okochi I love telling stories. I write about my... Read More
Charity Raffle
Win 2 Tickets to King Hedley II with a meet and great with Lenny Henry... Read More
Sickle Cell Society Announced as one of the Mayor of Brent’s Charities of the Year
On Wednesday 1st May, newly elected Brent Mayor, Cllr Ernest Ezeajughi, announced his two charities... Read More
Global Make Some Noise
We’re delighted to announce that the Sickle Cell Society have been selected as a Global’s Make... Read More
Prescription Charges (APPG)
Have you been adversely affected by the financial burden of prescription charges? How does this... Read More
Sickle Cell and the Social Sciences
Professor Simon Dyson (De Montfort University) has recently published a new book which brings... Read More
40th Anniversary Gala Ball
40th Anniversary Gala Ball Sickle Cell Society celebrates 40 Years with Gala Ball The Sickle... Read More
Mentoring Programme published on British Journal of Haematology
Sickle Cell Society mentors, June Okochi, Michael Tsiagbe, and Whitney Joseph along with chief executive, John James... Read More
Skibadee’s Sickle Cell Auction
Award winning musician, MC Skibadee is auctioning off two unique outfits from his latest music... Read More
Patient and Public Voice (PPV) partners wanted
NHS England are recruiting Patient and Public Voice (PPV) partners to be part of NHS... Read More
Brent SC&T Centre’s 40th Anniversary
The Brent Sickle Cell and Thalassaemia Centre is celebrating its 40th Anniversary this year. As... Read More
Public Health England – Job Vacancy
Public Health England – Job Vacancy: National Programme Manager – Sickle Cell and Thalassaemia Public... Read More
Tayo Oladapo Memorial Service
It’s three years now since we had the shock of the late Councillor Tayo Oladapo’s... Read More