It’s Valentine’s! Are You My Type?
This article written by Iyamide Thomas (NHS Engagement Lead) for Valentine’s Day five years ago... Read More
BDB meets South London service users to discuss ‘My Sickle Cell Journal’
On Saturday 9th February 2019, I partnered with our South London Link team, at their... Read More
Fitness Boot Camp – In Aid of Sickle Cell
On Saturday 23rd March the Odd Squad is running a Fitness Bootcamp to raise funds to support... Read More
A Month of Struggles
I have been finding things pretty difficult from my last physio appointment as the exercises... Read More
AliyasthoughtsSCD: Never Stop Trying
When you leave school you have some sort of plan of what you want to... Read More
Children’s Activities February
Book your child’s place here Book your child’s place here
Mentee: Faith
Faith, aged 16, lives with Sickle Cell SS and joined the mentoring programme in January... Read More
The Societies are engaged again!
By Iyamide Thomas, NHS Engagement Lead, Sickle Cell Society The Good News If you are... Read More
‘Help Us, Help You’ – A New NHS Campaign
NEW NHS ‘HELP US, HELP YOU’ CAMPAIGN SUPPORTS THE PUBLIC TO STAY WELL OVER THE... Read More
My first Physiotherapy appointment and my radio Interview
I hope everyone had a lovely Christmas, I would like to wish you all a... Read More
Children’s Holiday 2019
We are excited to announce that applications for the 2019 Children’s Holiday are now open!... Read More
How I Continue to Cope
Well here I am again giving you an update on how I am doing and... Read More
BDB meets New Comprehensive Pain Management Programme team
On Friday 14th December BDB was invited to Hammersmith Hospital’s New Comprehensive Pain Management Programme.... Read More
BDB hosts at Brent Council Black History Month event
On the 25th October the Breaking Down Barriers project hosted an awareness stand at the... Read More
Volunteers Wanted
We are looking for volunteers to help raise awareness of sickle cell and raise funds... Read More
Sickle Cell Society Chief Executive, John James, Receives OBE
John James, Chief Executive of the UK’s only national sickle cell charity, has been awarded... Read More
December Children’s Activities
This month we have some great Children’s Activities lined up for you to get involved... Read More
Lucreta LaPierre, Friend of the Society, Sadly Passes Away
Everyone at the Sickle Cell Society was deeply saddened to hear of the passing away... Read More
I’m In Crisis – A Report
New Report Published on the Lack of Representation that Sickle Cell Disease and Thalassaemia has... Read More
World Championship Boxing Ticket Give-Away
The Sickle Cell Society are excited to be GIVING AWAY two tickets to the World... Read More
Patient Story: Sam Ovuorie
Sam was being treated for malaria when he was first diagnosed with Sickle Cell disease... Read More
Prescription Payment Petition
A new petition has been launched to “Provide prescription payment exemption for people with Sickle... Read More
BDB finds support for SCD patients who are iron overloaded
BDB finds support for SCD patients who are iron overloaded Did you know you... Read More
Run for the Sickle Cell Society
We are looking for people to run in marathons, half-marathons, fun-runs and more to help... Read More
AliyasthoughtsSCD: Depression
Depression depression depression it’s such an awkward thing to talk about it comes in all... Read More
Warmer Homes Programme
If you’re a London homeowner on benefits you may be eligible for a free boiler,... Read More
November Children’s Activities
Book your free place here: https://tinyurl.com/Nov-Activities Saturday 03rd November Lazer tag and VR Party and... Read More
Black History Month Activities
To celebrate Black History Month we took a group of children to learn more about... Read More
My Wait Continues
My wait for my hip appointment being brought forward continues, but I feel more positive... Read More
Advocacy for Teenagers and Yoga & Wellbeing for Parents/Carers
Teen Empowerment Join our panel to discuss advocacy for teenagers. We will be having a... Read More
Speaking Up on Sickle Cell by Whitney Joseph
My Sickle Cell has always been – and will likely always be – very private... Read More
Children’s Activities – October
To book your child’s place on any activity click here To book your child’s place... Read More
New Sickle Cell Trait Study in USA
Genomics of Exertion Related Events in Sickle Cell Trait The Consortium for Health and Military... Read More
BDB meets Genetic Alliance UK TO RESEARCH; HOW CARE SHOULD BE COORDINATED FOR RARE DISEASES
Although good examples of coordinated care exist, there are still serious failings in how care... Read More
SOS: GAMES X GOALS
Join us for an evening of games, food and lifestyle tips to help you achieve... Read More
Hip Replacements and Children’s Books
I have been struggling recently to come to terms with the fact that I definitely... Read More
The Nathan Ampofo-Anim Karting Fundraiser
Help us support Nathan and his dream to be a successful racing driver and show... Read More
Born in Shame – Became a Dame
Professor Dame Elizabeth Anionwu in conversation with BCA Dawn Hill CBE Don’t miss out on... Read More
AliyasthoughtsSCD: Trapped
Sickle cell can sometimes bring a world of darkness and sadness. There are times when... Read More
My Berlin Experience by Desiree Saunders
I was diagnosed with sickle cell since the day I was born and have had... Read More
Simonne Kerr, friend of the Society, tragically killed
[Image: Jenica Leah (Children’s Author), Dawn Butler MP, Simonne Kerr, Professor Dame Elizabeth Anionwu, John... Read More
Sickle Cell Cure for Anusjka
Anusjka has struggled all her life with excruciating pain, fatigue, blood transfusions, hip replacements and... Read More
Annual General Meeting 2018
On Saturday 21st July we held our 39th Annual General Meeting at the De Vere... Read More
Living with Sickle Cell
My childhood consisted of constantly being admitted into hospital; I was never out of hospital... Read More
BDB Meets an Aspiring Sickle Cell Nurse, With Sickle Cell
Due to the nature of her work she felt it would be best to remain... Read More
Hair Cut Fundraiser
Joann Gwaliamba is raising money for us in a very special way. She has decided... Read More
Pain Management Workshop
PAIN MANAGEMENT USING COMPLEMENTARY PHYSIOLOGY AND MEDICATION Due to popular demand, this is our second... Read More
SUPPPORT GROUP BUILDING CAPABILITIES WORKSHOP 3
CAPACITY BUILDING & JOINT WORKING This is the third of our enjoyable series of FREE... Read More
MY STORY ….continued
Once upon a time I would have classed myself as unfortunate, believing the way sickle... Read More
Annual Academy for Sickle Cell and Thalassaemia Conference
ABOUT This Academy for Sickle Cell and Thalassaemia annual conference is one of the leading... Read More
#TravellingWithSickleCell – Catch Flights Not Crises!
I recently completed my first solo trip abroad, across the oceans, to Japan. I visited... Read More
“How Did You Contract That?” – A Report
The Sickle Cell and Thalassaemia All-Party Parliamentary Group (SCTAPPG) Report into the institutional failures of... Read More
New Sickle Cell Disease Clinical Trial in the UK
New Sickle Cell Disease Clinical Trials in the UK Despite years of research and development,... Read More
New blogger: Laurel Brumant-Palmer
My story Let me firstly introduce myself to you all, My name is Laurel Brumant-Palmer,... Read More
Sickle Cell Service Review
Over the past three months the Sickle Cell Society has been gathering feedback from patients,... Read More
Sickle Cell Society Chief Executive is awarded an OBE in the Queen’s Birthday Honours
John James, Chief Executive of the UK’s only national sickle cell charity, has been awarded... Read More
BDB at the Marcus Lipton Community Enterprise, Lambeth
BDB Resources are now available at the Marcus Lipton Community Enterprise, Lambeth After meeting with... Read More
BDB MEEETS IMARA to talk about IMR-687.
On Sunday 3rd June 2018 , Breaking Down Barriers facilitated an information day with Imara,... Read More
BDB hosts at Willesden New Testament Church of God
On Saturday 19th May 2018, the Breaking Down Barriers Project worked closely with Willesden New Testament Church... Read More
2018 Winner: GSK IMPACT Awards
The Sickle Cell Society has won a national award for excellence! We have beaten more... Read More
BDB hosts at St Mary’s Parish Community Day
On Saturday 12th May 2018, the Breaking Down Barriers Project worked closely with St Mary’s... Read More
BDB talks employment and Universal Credit at Canada Water Library
On Saturday 28th April, Breaking Down Barriers was invited to present information about employment &... Read More
IMR-687 Clinical Trial
Imara Inc., is dedicated to developing novel therapeutics for patients with sickle cell disease. Despite... Read More
AliyasthoughtsSCD: Isolation
As I’ve said before, sickle cell can become a lonely and isolating illness. I find... Read More
Standards for the Clinical Care of Adults with Sickle Cell Disease in the UK – 2018
The Sickle Cell Society in partnership with the UK Forum on Haemoglobin Disorders are proud... Read More
Breaking Down Barriers meets Simon Owen – Yoga.
On Saturday 7th April 2018, my colleague Tracy Williams (Hackney Engagement Project Officer) facilitated a... Read More
BDB & TROPICAL SUN COCONUT OIL GIVEAWAY.
Coconut oil has many benefits; it is packed with nutrients and vitamins that make it... Read More
Pain Management Workshop
Managing pain in Sickle Cell can be challenging and is managed by the individual in... Read More
Teenage Transition Workshop
Information Workshop for Teenagers 12+ living with Sickle Cell Disorder (SCD). This workshop will be... Read More
Employment & Universal Credit Workshop
Come and find out what you need to know about employment & Universal Credit.... Read More
BDB Meets Simon Dyson & DRILL UK
On Wednesday 11th April 2018, I was invited to De Montfort University in Leicester by... Read More
Automated Red Blood Cell Exchange: NICE recommends new sickle cell treatment device that could save the NHS millions
Automated Red Blood Cell Exchange: NICE recommends new sickle cell treatment device that could save... Read More
